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Run in City to Surf and Raise Money for Children’s Cancer Research!

This year, the Perth City to Surf for Activ will be on Sunday 27 August starting in Perth City and finishing at City Beach overlooking the Indian Ocean.

Including a marathon, half marathon, 12km run, 12km walk, 4km run and walk as well as a 4km wheelchair, the Perth City to Surf for Activ provides a great chance for people from all walks of life and different levels of fitness to raise funds for charities including the Children’s Leukaemia & Cancer Research Foundation (Inc.).

Sign up to run the City to Surf and be sponsored to raise money for CLCRF through our Everyday Hero Hub. Go to http://fund.clcrfgiving.org/event/MotivetoMove and start your fundraising page so that you can be sponsored to run and raise money for CLCRF!

Lawyers Fundraising for Children’s Cancer in Pub2Pub

O’Brien Connors & Kennett Lawyers (OCK Lawyers) are raising money for the Children’s Leukaemia & Cancer Research Foundation (Inc.) through the Pub2Pub Charity Fun Run & Festival in Sydney — which takes place on Sunday 27 August. Sponsor them.

Paige Day of O’Brien Connors & Kennett Lawyers explains why they are raising money for CLCRF this year.

“We chose to support the CLCRF because every child deserves a childhood full of happiness and laughter,” said Paige.

“The CLCRF plays an integral part in the treatment of children with cancer and we hope that our donation will assist their research better and provide a cure! If we can encourage at least one person to donate we know that this will make a huge difference.”

There are three course options catering to serious runners through to families: 13km, 6km and 3km. This is Sydney’s most scenic fun run, taking in many of the spectacularly beautiful Northern Beaches. A Family Festival is held at the Newport Beach finish line with live music, a licensed bar area, international food options and plenty of fun rides and games for the kids.

If you would like to register to run and be sponsored to raise vital funds for cancer research for the CLCRF, just go to www.clcrfgiving.org and start a fundraising page. For those who would prefer to give to the CLCRF rather than run, then you can sponsor OCK Lawyers.

Ladybird CLCRF Mascot Dance-off at the Freo Dockers’ Game

Fremantle’s round 20 clash with Gold Coast on Saturday 5 August at Domain Stadium focused on several community organisations that are part of the Associate Friends of the Fremantle Dockers Foundation.

Children’s Leukaemia & Cancer Research Foundation (Inc.) was featured at the game and is one of the organisations proudly supported by the Fremantle Dockers Foundation this year. It was Fremantle’s second last game ever at Domain Stadium and they were victorious against the Gold Coast Suns, winning 90-67.

A pre-game and half-time mascot dance-off took place where Kiara Galipo, daughter of Jonelle Carlsson, whose family have been key long-time supporters and regular volunteers of CLCRF, wore an amazing red ladybird mascot to proudly represent the CLCRF in front of 40,000 spectators in the stadium.

Kiara made the costume herself within a week and explained why she decided to represent the Foundation. “I love making people smile with my costumes, so representing CLCRF was a great opportunity to support the kids! It’s the first time I’ve been to a live game and the atmosphere is great, not to mention the Dockers won!”

Sadly, Kiara’s father, Tony Galipo, who was a massive Fremantle Dockers fan, lost his fight to pancreatic cancer a few months earlier. Jonelle’s son, Jayden, was very excited to be at his first football game.

The game was a time for the family to show their tremendous support for the CLCRF, remember Tony, and celebrate his life together as a family. Thank you to Jonelle Carlsson and her family for their amazing ongoing support of the Foundation.

We need your email address

How important is your email address to us? The answer to that is “Very Important”.

With your email we can contact you quickly and cost effectively while saving on paper. This allows us to keep you up-to-date with events and offers from the Foundation as they occur.

If you think you haven’t yet supplied us with your email address, please contact the office so we can update our records. After all, we would hate for you to miss out on something fabulous while supporting our great cause.

Thank you!

2017 South West bike trek

The ride kicks off:

Day 1 – Monday 9 October Mandurah to Pinjarra (Fairbridge)
Day 2 – Tuesday 10 October Pinjarra (Fairbridge) to Harvey
Day 3 – Wednesday 11 October Harvey to Bunbury
Day 4 – Thursday 12 October Bunbury to Busselton
Day 5 – Friday 13 October Busselton to Margaret River
Day 6 – Saturday 14 October Margaret River to Augusta

PLEASE REMEMBER: THIS TREK IS A CHARITY RIDE, NOT A RACE IN ANY SHAPE OR FORM AND WILL THEREFORE BE CONDUCTED AT A LEISURELY PACE. THE GROUP WILL WORK TOGETHER TO ENSURE EACH OTHER’S WELLBEING.

Costs: There is a daily cost of $25 per day which covers most meals, accommodation, fuel etc. This is a total of $150 if you wish to participate in the entire Trek.

Sponsorship: The sponsorship minimum that is required but not limited to is $300 if you wish to take part in the entire Trek or $100 for one section or day.

Riding Options: You do not have to participate in the entire ride to take part in this Trek. You are able to arrange to ride certain days and legs to suit you.

Criteria: For the safety and benefit of all participants riders are expected to be able to maintain a speed of at least 20 kilometers per hour for a reasonable period. Each segment of the Trek is 25 to 30 km. Each day is approximately an 80 km ride.

You must have a reasonable level of fitness and maintain a pace of at least 20km per hour. There is a minimum age of 18 years unless a parent or guardian signs a disclosure for you to be able to participate in this fundraiser.

What you need: Road worthy bike, helmet, water bottle, sleeping bag, pillow, toiletries, towel, riding clothes, casual clothes and pyjamas. We have escort cars and a trailer which your belongings can travel in but please pack sparingly. It is also recommended to bring a spare tube or tyre for your bike in case of a puncture.

For more details, please contact Eric Maddock on 0433 905 703 or email [email protected]

Kununurra cakes lead to cash for the foundation

There was no shortage of cupcakes in Kununurra when Taylor, Jack and Amira decided to turn their home into a patisserie to support CLCRF. They wanted to make and sell as many cupcakes as possible to raise funds to help other kids.

They cooked up a storm, making more than 750 cupcakes. Boxes were piled high across the dining table and a long production line commenced to pipe delicious icing and decorative delights to top off the yummy cakes.

Their truly amazing efforts raised $2,000. With their cupcakes’ popularity, could this be a future career path for these young chefs?

Thank you to Taylor, Jack and Amira, and mum, Cherise, for sharing this story and photos.

HBF Run for a Reason 2017

Congratulations to ALL the individuals and teams that participated in the 2017 HBF Run For A Reason held on Sunday 28 May! In total $1,181,361 was raised for WA charities through the Run, of which over $3,746 was raised for CLCRF.

There was a record turnout of 35,000 people who braved the cold to take part in the Run. As the first batch of runners stood behind the start line at 6.45am it was only a chilling 5 degrees Celsius. A big thank you and well done to the individuals and teams who ran on behalf of CLCRF!

Teams: Friends of Finlay, Magellan Power. Statewide Bearings and Team Kai.

Individuals: Ashley Damerell, Casey Walters, Roya Ansari Ian ‘Seb’ Cole, Kat Newton, Shana-Kura Derench and Taryn Carslake.

Next Run Event

This year’s Chevron City2Surf which will be held on Sunday 27th August is the next fun run. It’s not too late to register, you can sign up today and support Child Cancer Research.

Visit www.clcrfgiving.org to get started.

Contact Kate in the office on 9363 7400 if you would like a KTFA Motive to Move Singlet to run in.

Leaving a legacy

While times are tough and Australian’s feel the ripples of the economic downturn, many are forced to make the difficult decision that charity begins at home. Fortunately, finding yourself with less cash than normal does not mean that you cannot generously help causes close to your heart in the future.

Leaving a legacy (bequest), in your Will, allows you to give support to your favourite charities beyond your lifetime and ensures that there is a legal document outlining your wishes. You can leave money, property or a percentage of your estate after your passing; and with it your legacy for the future.

The gift provides crucial funding to allow the likes of the Children’s Leukaemia & Cancer Research Foundation (Inc.) to continue its vital work.

When you leave a Legacy you can have peace of mind that you will, one day, be supporting the charity whose work you believe in. This way, not only can you save the dollars now, you can also take steps to give a charity the gift that keeps on giving, after you pass.

Anyone can leave a Legacy, however small or large. If you have considered joining the many Australian’s who have already exercised their free ‘Will’ and chosen to leave a Legacy, the good news is that the process is relatively quick and easy. Your solicitor can advise you on this.

Legacies can be anonymous but, letting your charity know of your kindness allows them to make plans for the future, assist you with wording the Legacy and thank you personally.

We always suggest that you discuss what you propose with your family so they know of your wishes. Family should always come first.

For more information please contact:

Mrs Andrea Alexander
Executive Officer Children’s Leukaemia & Cancer Research Foundation (Inc.)

Phone: 9363 7400
Email: [email protected] com.au

Raffle Winner Announced

Our ‘Lucky Numbers’ Raffle #42 (Permit No LS209648917) was drawn this Friday 9 June. Winning ticket No 79061. The winner has been notified and is VERY happy! Congratulations to our Lucky Winner – you have won $15,000 CASH!

Our next raffle commences on the 19/06/17 – if you would like to purchase tickets – please ring our Raffle Hotline 1300 139 651 OR head to our raffle website.

Thanks to all who supported this raffle and helped raise money for vital research into childhood cancers.

Cracking the Cancer Code for Kids

‘Excitement’ and ‘cancer’ are two words that shouldn’t really go together, until you add the word ‘hope’ to the sentence. Those are the words flowing out of the mouths of researchers from the Telethon Kids Institute in Perth as they edge closer to answering what causes pediatric cancer, thanks to funding by the Children’s Leukaemia & Cancer Research Foundation (Inc.).

Dr Mark Cruickshank, who leads the Cancer Genomics and Epigenetics team, said it has been a long road to reach the pointy end of years of research and is excited to be on the verge of cracking the cancer code for kids. “This is one project where we have no idea what causes leukaemia in infants and that’s a really big focus of mine at present, because I’m very close to finding what we think are the answers to that conundrum,” Dr Cruickshank said. “It has taken more than four years to reach this stage, by studying the gene sequencing mutations in cells. This in turn has now escalated the drug therapy studies that are built on that gene research.”

Dr Cruickshank revealed that the research team has been analysing data from cancer cells of infants to identify mutations that are not present in patients’ healthy cells. As infants are ‘brand new’ to life they have had little time for their cells to mutate outside the womb, so there is something genetic causing them to have cancer. “We’ve found some extremely exciting signals from the data, statistical signals, and now we need to test these out in the laboratory. This could be a huge advancement and it could open up a lot of different avenues, for example we could look at cohorts of patients to see if a mutation is associated with treatment outcomes,” he said.

The genetic research and understanding has been crucial to take the team to this next stage as the make-up of the leukaemia affects whether the treatments will work or not. Having a genetic understanding can cut out the guessing games so patients can receive doses of drugs that are effective and also minimise the side effects to their bodies. “We already know some drugs fail in some patients and we think this is due to the genetics,” Dr Cruickshank said.

 While researchers may have found the causes of the diseases, the next step is to develop the best treatment protocols to deliver to patients and their families.

“I don’t really think that gaining short amounts of extensions of life is where we need to end up, we really need to cure these diseases. I want to reach a point where the therapies aren’t putting the families through a year’s worth of pain and then a lifetime of uncertainty,” he said.

“I believe in finding absolute cures – and that is the goal of the research, to do that we need help. To accelerate the research we need to be able to test the drugs in all different ways and we need the best technologies. We have the capacity to do this, but it takes money to do it.”

If you would like to contribute support to Dr Cruickshank and his team’s research to help make a difference you can donate to CLCRF or contact the Foundation via email or phone +61 8 9363 7400 for further information.

Read a recent paper on infant leukaemia cell lines and drug screening published in Volume 31 of Leukemia Journal by Dr Mark Cruickshank

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