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Leaving a legacy

While times are tough and Australian’s feel the ripples of the economic downturn, many are forced to make the difficult decision that charity begins at home. Fortunately, finding yourself with less cash than normal does not mean that you cannot generously help causes close to your heart in the future.

Leaving a legacy (bequest), in your Will, allows you to give support to your favourite charities beyond your lifetime and ensures that there is a legal document outlining your wishes. You can leave money, property or a percentage of your estate after your passing; and with it your legacy for the future.

The gift provides crucial funding to allow the likes of the Children’s Leukaemia & Cancer Research Foundation (Inc.) to continue its vital work.

When you leave a Legacy you can have peace of mind that you will, one day, be supporting the charity whose work you believe in. This way, not only can you save the dollars now, you can also take steps to give a charity the gift that keeps on giving, after you pass.

Anyone can leave a Legacy, however small or large. If you have considered joining the many Australian’s who have already exercised their free ‘Will’ and chosen to leave a Legacy, the good news is that the process is relatively quick and easy. Your solicitor can advise you on this.

Legacies can be anonymous but, letting your charity know of your kindness allows them to make plans for the future, assist you with wording the Legacy and thank you personally.

We always suggest that you discuss what you propose with your family so they know of your wishes. Family should always come first.

For more information please contact:

Mrs Andrea Alexander
Executive Officer Children’s Leukaemia & Cancer Research Foundation (Inc.)

Phone: 9363 7400
Email: andrea@childcancerresearch. com.au

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Raffle Winner Announced

Our ‘Lucky Numbers’ Raffle #42 (Permit No LS209648917) was drawn this Friday 9 June. Winning ticket No 79061. The winner has been notified and is VERY happy! Congratulations to our Lucky Winner – you have won $15,000 CASH!

Our next raffle commences on the 19/06/17 – if you would like to purchase tickets – please ring our Raffle Hotline 1300 139 651 OR head to our raffle website.

Thanks to all who supported this raffle and helped raise money for vital research into childhood cancers.

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Cracking the Cancer Code for Kids

‘Excitement’ and ‘cancer’ are two words that shouldn’t really go together, until you add the word ‘hope’ to the sentence. Those are the words flowing out of the mouths of researchers from the Telethon Kids Institute in Perth as they edge closer to answering what causes pediatric cancer, thanks to funding by the Children’s Leukaemia & Cancer Research Foundation (Inc.).

Dr Mark Cruickshank, who leads the Cancer Genomics and Epigenetics team, said it has been a long road to reach the pointy end of years of research and is excited to be on the verge of cracking the cancer code for kids. “This is one project where we have no idea what causes leukaemia in infants and that’s a really big focus of mine at present, because I’m very close to finding what we think are the answers to that conundrum,” Dr Cruickshank said. “It has taken more than four years to reach this stage, by studying the gene sequencing mutations in cells. This in turn has now escalated the drug therapy studies that are built on that gene research.”

Dr Cruickshank revealed that the research team has been analysing data from cancer cells of infants to identify mutations that are not present in patients’ healthy cells. As infants are ‘brand new’ to life they have had little time for their cells to mutate outside the womb, so there is something genetic causing them to have cancer. “We’ve found some extremely exciting signals from the data, statistical signals, and now we need to test these out in the laboratory. This could be a huge advancement and it could open up a lot of different avenues, for example we could look at cohorts of patients to see if a mutation is associated with treatment outcomes,” he said.

The genetic research and understanding has been crucial to take the team to this next stage as the make-up of the leukaemia affects whether the treatments will work or not. Having a genetic understanding can cut out the guessing games so patients can receive doses of drugs that are effective and also minimise the side effects to their bodies. “We already know some drugs fail in some patients and we think this is due to the genetics,” Dr Cruickshank said.

 While researchers may have found the causes of the diseases, the next step is to develop the best treatment protocols to deliver to patients and their families.

“I don’t really think that gaining short amounts of extensions of life is where we need to end up, we really need to cure these diseases. I want to reach a point where the therapies aren’t putting the families through a year’s worth of pain and then a lifetime of uncertainty,” he said.

“I believe in finding absolute cures – and that is the goal of the research, to do that we need help. To accelerate the research we need to be able to test the drugs in all different ways and we need the best technologies. We have the capacity to do this, but it takes money to do it.”

If you would like to contribute support to Dr Cruickshank and his team’s research to help make a difference you can donate to CLCRF or contact the Foundation via email or phone +61 8 9363 7400 for further information.

Read a recent paper on infant leukaemia cell lines and drug screening published in Volume 31 of Leukemia Journal by Dr Mark Cruickshank

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Blazing paddles on the Murray River

By Greg Robertson – President, Mo55sCC Inc

It was a canoeist’s dream day for a great cause when 26 paddlers took to the Murray River on a beautiful autumn day on Monday 24 April.

The annual fundraiser paddle event for ‘Mandurah over 55’s Canoe Club’ (or Mo55sCC) brought together members and friends taking on their choice of several paddle options and donating funds to support CLCRF.

Based at Murray Bend on the Murray River, near Ravenswood, various groups of paddlers tackled different courses across the day. Some set out early to paddle upstream to Pinjarra and back (30kms), some did one-way downstream from Pinjarra (15kms), and other canoeists took shorter options both up and downstream.

But let’s not forget the many others who stayed off the water, but gave their support.

Paddlers and supporters all contributed to the ‘kitty’ and enjoyed socialising around the BBQ with guest of honour, CLCRF’s Kim Williamson.

Kim gave the crowd an overview of the Foundation’s work, and thanked the paddlers for their donations and ongoing support. Coupled with members’ associated craft and book club fundraisings the total funds raised this year came to $1,733. A great result from a generous few.

Club President, Greg Robertson explained the Mandurah over 55’s Canoe Club members’ event has been held for about 18 years.

“From little things, big things have grown. So, cumulatively, Mo55sCC and friends, like many other valued groups, are quietly achieving great support for the CLCRF,” Greg said.
“Mandurah’s keen kayakers are eager to paddle for CLCRF again next year.”

The CLCRF would like to sincerely thank the Mandurah Over 55’s Canoe Club for their support over many years.

 

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Order your NEW 2017 | 2018 Entertainment™ Books and Digital Membership!

We are excited to announce that the NEW 2017 | 2018 Entertainment Books and Digital Memberships are here!  Order yours today!

The Children’s Leukaemia & Cancer Research Foundation  are very excited to be fundraising with Entertainment™ this year. When you purchase your Entertainment™ Books & Entertainment™ Digital Memberships from us to support our fundraising efforts, 20% of every membership sold contributes to vital research into childhood cancers.

You can now Order the NEW 2017 | 2018 Perth Entertainment™ Membership for just $70 and you’ll receive over $20,000 in valuable offers you can use until 1 June, 2018.

Discover hundreds of valuable up to 50% off and 2-for-1 offers for many of the best restaurants, cafés, arts, attractions, hotels, travel, shopping and much more – choose your way with the following:

  • The traditional Entertainment™ Book Membership that comes with the Gold Card and vouchers.
  • The new Entertainment™ Digital Membership that puts the value of the Entertainment™ Book into your iPhone or Android smartphone!

The Perth Entertainment™ Membership covers the following areas: Including Mandurah, Bunbury, Busselton, Dunsborough, Margaret River, PLUS the best of Bali. You can also purchase an Entertainment™ Membership for other states and New Zealand!

Order your Entertainment™ Membership Today!
Alex

CLCRF funding to Dr A. Beesley

A landmark study that lifts the lid on key features of one of the most hostile cancers will soon be published with funding from the CLCRF.

One of the Foundation’s Fellowship recipients, Dr Alex Beesley with Dr Anja Stirnweiss have comprehensively described, for the first time, the genetics behind NUT Carcinoma.

NUT Carcinoma is one of the most aggressive human cancers, and there is a desperate need for effective therapies for patients with this illness. It is a rare genetically defined disease not specific to any tissue type or organ and common sites include the head and neck.

So far the cancer has been very resistant to standard chemotherapy treatments. Specialists have found that tumours may initially respond to therapy, but then rapid recurrence is experienced. Treatment must be tailored to the individual patient.

The study is a culmination of the research program that the Foundation has funded over the last several years, both in the form of project grants and Dr Beesley’s CLCRF Fellowship. This latest award of $12,000 will assist in the publication of the highly important document.

It is hoped that the manuscript will be submitted to the journal Oncotarget and it represents a milestone publication that will help inform therapy choices for this aggressive cancer.

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Carter Dunn Headshave

Expressing sympathy for cancer victims and what they go through was not enough for Carter Dunn. He wanted to do more and he did: shaving his head in the name of raising money for cancer research.

It was a sudden commitment that Carter was determined to see through when he came home from school one Monday to ask his parents if he could shave his head for charity.

“One of Carter’s friends had a family member who was battling leukaemia and he just came home and said he felt like he wanted to show his support and asked if he could shave off his hair,” Jacqueline Dunn explained.

“Carter literally decided on the Monday that he was going to do it on the Friday of the same week, so we set up his fundraising account and shared it via social media.”

When Friday came, a small amount of nerves kicked in, but Carter had no doubt that he was going to do it. He had the full support of his school friends who still couldn’t quite believe he was going through with it.

Once all his hair was reduced to tiny stubble his first reaction was – “Wow, it’s cold!” Then Carter smiled and said he was proud of himself, as were all his friends who cheered him on.

For Carter’s parents it was one of many proud parent moments they have had, acknowledging that he never hesitates to think of others despite his own personal trials. Carter recently had to undergo surgery to remove his gallbladder.

“We felt mega proud that Carter who has his own personal battles daily, just felt the need to do something for others, acted on it and followed through,” Jacqueline said.

Within five days Carter exceeded the target of $250 that he hoped to raise, instead he reached $440. He has no hesitation in repeating the shave once he has regrown his hair.

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Sharing a unique story of survival

Mundijong resident and cancer survivor Georgia Lowry spoke about her new book Growing Georgia at the Byford Gala Ball last month. The 22-year-old survived bone cancer* as a baby and the book details her journey. Ms Lowry said her family inspired her and that Wilma Mann the author of the book helped her put it all together. “The process was a lot of fun,” she said.

“Wilma asked me many questions that were recorded and she managed to bring my story out in a way that really reflected who I was and what I want to say.” Ms Lowry said she hoped people would read it and become more aware of bone cancer. “Just because you, a family member or a friend has cancer or an illness it is definitely not the end of the road,” she said.

“Positive thinking and the power of the mind does a lot of things. “Well, it has done for me anyway.” Ms Lowry said she was lucky and thankful for the love and support she had from her family and friends.

“I’m really focused on my role as ambassador for the Children’s Leukaemia and Cancer Research Foundation,” she said. “I want to help find a cure so kids like me have a better outcome.” Ms Lowry works at a childcare centre and in her spare time rides her horses three days a week in preparation for competitions on the weekends but her main aim was to help with research.

“I hope one day to find a cure,” she said. “There is always hope and if anyone needs to talk to someone reach out to me. “I have a public Facebook page and will always talk to someone going through this.” Ms Lowry said if her journey could help even just one person she would be happy.

For more information visit Facebook.com/GeorgiaLowryPublicSpeaker.

Source: Serpentine Jarrahdale Examiner Newspaper, April 13, 2017 – Page 3
Written by: Juanita Shepherd

*Story Correction – Georgia Lowry was diagnosed with and has survived Acute Lymphoblastic Leukaemia.

Royal-Perth

Charity Golf Day Royal Perth Golf Club

They may be more accustomed to green turf and and getting out of sand traps, but representatives from Royal Perth Golf Club embraced the chance to step into scientific surrounds on a visit to the CLCRF Research Lab.

Under the wing of tour guide Professor Ursula Kees, the golfers learned about very different challenges the researchers came up against each day as they strive to find answers to how they can help children with cancer.

It was an eye opening visit to see just what is taking place in the lab funded by CLCRF. They witnessed where and how the ‘cell lines’ taken from tumours of infants who are fighting or have survived cancer are being used to develop more effective treatment protocols for children around the world.

It was an ‘ace’ shot for the Foundation to make a great impression on the captivated audience. CLCRF has now been chosen as the 2017 beneficiary of the Royal Perth Golf Club’s annual charity day.

Thank you to the Royal Perth Golf Club for their generous support. Further details about the day will follow.

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Landsdale forum news

It has been seven years of fabulous support from Landsdale Forum News and their customers. What began in 2010 has in total amounted to $10,917 donated to the CLCRF to fund childhood cancer research.

As they sadly have to close their doors we at the CLCRF want to wish owner, Paul Slattery, all the best for his future endeavours as he has played a big part in what CLCRF has been able to achieve under the Lansdale Forum News banner.

A huge THANK YOU to Paul and Landsdale Forum News for their incredible support towards child cancer research over the years as a valued member of the Foundation.