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MandurahOver55Web

Kayakers raise $2300 for CLCRF

In the words of Greg Robertson, President of Mo55sKC:

THE Mo55sKC held its annual fundraiser paddling event at Mandurah’s Estuary Bridge foreshore on Monday 29 April. A great launch point with excellent BBQ/picnic facilities; something for paddlers and landlubbers alike!

This year the Yahoo over 55’s Bushwalking Club were invited to participate, and helped swell total involvement to over 70 for the event.

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Local cancer survivor a real role model

If you set your eyes upon this pint-sized pocket rocket today, you could never comprehend the medical struggles she faced at such a young age. Georgia Lowry was born on June 3, 1994 at St John of God Hospital in Subiaco. A younger sister to Grace and a daughter to Ann Marie and Shaun, her birth was the perfect piece of the puzzle for the Mundijong family. However their lives were turned upside down just eight weeks later when Georgia became lethargic and pale.

Blood test results revealed the ugly truth – Georgia had a rare aggressive type of cancer called acute lymphoblastic leukaemia, of which less than two per cent of infantile patients survive.

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Perth Tradie Expo

Volunteers needed for the Perth Tradie Expo

Each year, Children’s Leukaemia & Cancer Research Foundation (Inc.) participates in the Perth Tradie Expo and we are on the lookout for some more volunteers to help collect donations over the weekend. This year, the Expo will take place at the Ascot Racecourse on 21-23 June from 8am to 5pm.

The Expo is proudly sponsored by Toolmart and provides a second to none chance to purchase all types of work equipment from power tools to excavator’s at special Expo prices. There’s not just great savings for work tools but you’ll also find amazing specials on vehicles, camper-trailers, accessories, machinery and much, much more.

The Perth Tradie Expo is open to the General Public and entry is only a Gold Coin donation. These donations are collected by our amazing volunteers and will go towards two charities, including the Children’s Leukaemia & Cancer Research Foundation. Last year, our wonderful volunteers collected a grand total of $5,182.45!

If you are interested in volunteering, you can choose your shift and volunteer as little or as much as you like! Not only will you have the opportunity to experience this wonderful expo but you would also be collecting much-needed funds for CLCRF to continue the important research into childhood cancer.

IMPORTANT INFO:
– To collect donations you need to be at least 16 years of age. If you would like to volunteer with younger children or siblings, there may be other volunteer jobs available for them, such as handing out fliers.

Simply contact the CLCRF office on (08) 9363 7400 or email admin@childcancerresearch.com.au to register yourself as a volunteer!

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CLCRF and Crema Coffee Co

Drink a little, help a lot.

Have you had a taste of the CLCRF exclusive coffee blend yet? The Children’s Leukaemia & Cancer Research Foundation have worked together with the wonderful coffee roasters at Crema Coffee Co. to create a unique and special coffee blend. Not only is the blend delicious but proceeds from every bag sold are donated towards continuing the important research into childhood cancer.

The blend is 100% Arabica coffee beans and is roasted for a richer intensity, with great nutty flavours and a milk chocolate finish. So why not make your morning cup of coffee a little more meaningful? The coffee comes in 250g or 1kg bags and can be ordered online, through the Crema Coffee Co. website.

A big thank you to Crema Coffee Co. for collaborating with us! These collaborations help tremendously with increasing the awareness of The Foundation and raising important funds.

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Jackson’s Story

Jackson is one of over 600 Australian children who are diagnosed with cancer every year. Just like many of these children, Jackson has spent the majority of his short life in hospital fighting the horrible disease.

Jackson’s Story begins with a suspected stomach bug when he was just 7 months old. Two different GPs brushed it off as a virus but Jackson’s mum Michelle remained concerned when his stomach seemed swollen and the vomiting and diarrhoea continued. After the second GP visit, Jackson vomited all over the floor at Woolworths and his eyes started to roll to the back of his head. A nearby midwife told Michelle to take Jackson to the hospital immediately.

“I kept saying Jackson, Jackson to try and get him to respond but he wasn’t really responding.” Says Michelle. “I just started panicking and panicking more now that a nurse had seen him and was worried enough to tell me to go to hospital.”

Michelle took Jackson to Bunbury Hospital and after being concerned about dark bruises on the top of his forehead, he was sent to a CT scan. A paediatrician then examined Jackson and Michele asked if she should be calling her husband Marc, who was working away, to come home.

“I remember the doctor looking up at me and the look on his face said everything. Without seeing the blood results, he was 99% sure that Jackson had leukaemia.”

They went straight to the Emergency Department at Perth’s Children’s Hospital where Jackson was diagnosed with both Acute Lymphoblastic Leukaemia (ALL) and Acute Myeloid Leukaemia (AML). Since his diagnosis Jackson has experienced many setbacks on his treatment journey, including a staph infection, a murmur in his heart and a relapse of AML in his right testis. He has undergone intense high dose chemotherapy, a bone marrow transplant and radiation therapy.

Jackson and his family still have a tough road ahead of them to beat this horrible disease. The family currently have to wait another three months to see if Jackson’s bone marrow transplant was successful, in the hope that he might be in complete remission.

To ensure CLCRF can continue to fund life-changing research to offer hope to families like Jackson’s, we need your help. By making a tax-deductible donation before June 30, you will be helping to make a huge difference.

Read more about Jackson’s story and donate today

 

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Hunter Reaches a Milestone on his Road to Recovery

We received some great news this week with six-year-old Hunter reaching a special milestone in his cancer treatment and being the first to ring Perth Children’s Hospital’s new treatment bell.

Friday 3 May marked 100 days since Hunter’s life-saving bone marrow transplant. On the very same day, the oncology ward at Perth’s Children’s Hospital unveiled its first ever treatment bell.

“The bell is a symbol that’s rung at the end of treatment to recognise everything that the child and the family has gone through in their cancer journey.” Says Dr Annie Ryan, Paediatric Oncologist.

The first 100 days after a bone marrow transplant are said to be the most critical and although Hunter is not in the clear yet, the end of his tough road to recovery is now in sight. This was excellent news for Hunter’s family who were devastated last September when Hunter relapsed after almost two years of treatment for acute lymphoblastic leukemia.

Hunter celebrated this big achievement with a limo ride and a swim in his friend’s pool. This is the first time Hunter has been healthy enough to swim since his diagnosis at the age of three.

By helping fund the important research into childhood cancer by CLCRF, more children like Hunter can reach milestones in their cancer treatment journeys. If you would like to make a donation to the Foundation, head to our donate page.

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Donation from Bunbury Rotary Club

The Foundation recently received a generous donation of $2,500 from the Bunbury Rotary Club. CLCRF Chairman Geoff Cattach was there to accept the donation at a club meeting earlier this month where he also gave a talk on the great work being done by the Foundation.

Every year, the Bunbury Rotary Club holds a Golf Day organised through club member John Hovey and the Hovey Group, a large family owned civil construction business in Bunbury. Proceeds of the annual Golf Day are donated to local charity groups.

Donations like this are so important for helping the foundation continue the ground-breaking research into childhood cancers. As a great way to give back to the community, this is something all community groups and organisations should consider.

CLCRF would like to sincerely thank the Bunbury Rotary Club. They have been a valuable supporter of the Foundation and we appreciate their continued generosity.

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Telethon Giving Ceremony / Beneficiaries Function

Chairman Geoff Cattach and CEO Andrea Alexander recently attended the 2019 Telethon Giving Ceremony at Crown Perth. The ceremony, led by Telethon Trust Chairman Richard Goyder, was a great chance to see how CLCRF’s Million Dollar Partnership with Telethon has helped so many.

The record breaking $38 million dollars raised by generous West Australians last year was handed over to 51 beneficiaries across WA. These included hospitals, medical facilities, research institutes and community organisations. All these beneficiaries provide vital services, therapies and equipment for children in WA.

Prime Minister Scott Morrison was the guest of honour at the giving ceremony and he said he felt humbled, overwhelmed and emotional to hear about the work done by WA organisations to help sick children and families.

“It’s not just the money that helps.” Says Morrison “$38 million is a tremendous achievement but it’s what’s behind the money that I think is truly special and is worth appreciating.”

Professor Jonathon Carapetis of the Telethon Kids Institute said the money raised by Telethon has helped the research centre, like other beneficiaries, to change children’s lives.

The ceremony was a wonderful celebration and CLCRF is honoured to be a Million Dollar Partner with Telethon. We look forward to raising more money for the important research into childhood cancer in this exciting partnership.

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Registrations are now open for the 2019 Sun-Herald City2Surf!

The Sun-Herald City2Surf presented by Westpac has raised over $40 million since 2008 when the fundraising tally was first recorded. This year City2Surf aims to help raise another $5,000,000 for more than 900 charities.

Join CLCRF at the iconic Sun-Herald City2Surf, Australia’s biggest fun run. Be one of 80,000 people to make their way from Hyde Park to the most spectacular finish line in the world, Bondi Beach!

By taking part in this event, you will be helping us fund vital child cancer research. Help us get new treatments to patients faster. Find out how to support us below!

How to set up a City2Surf supporter page:
Setting up an online supporter page in the City2Surf is easy!

Step 1: Register as an event participant online at the City2Surf official website.
Step 2: As CLCRF is a non-featured charity, skip the charity selection part of the City2Surf registration.
Step 3: After completing the event registration form, follow the prompts to visit the City2Surf fundraising website.
Step 4: Create your personal City2Surf supporter page and select us, Children’s Leukaemia & Cancer Research Foundation as your charity to support.
Step 5: Personalise your page with a profile photo and tell everyone why you’re supporting CLCRF.
Step 6: Share your unique supporter page link with your friends, family and colleagues, via email and social media.

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Tweaking immunotherapy to tackle sarcoma head-on

CLCRF are proud to be working with Sock it to Sarcoma to help fund research into sarcoma at the Telethon Kids Institute.

Sarcoma is a form of cancer that occurs in the bones and soft tissues such as fat and muscle. Despite making up 15-20% of cancers in children, sarcoma is still relatively unknown and under-researched.

Our funding has allowed researchers to develop a way to tweak immunotherapy to allow for more effective treatment for the cancer.

“There is no one else in Australia really doing this therapeutic work…” Says Professor Terry Johns, head of Telethon Kids Cancer Centre.

“The current treatments are also very nasty and aggressive, and if we can improve them so children don’t have to have such horrible chemo-therapy then that would also be useful.”

The Foundation is proud to be helping fund this important research in order to improve the treatment and survival rates for children battling sarcoma.

Donations made to CLCRF will go towards funding important research into childhood cancer and can be made here.