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Fun filled family night out supporting children’s cancer research

Radio Interview: 98.5 SonshineFM – Friday 30 August 2019

Event organiser for the Children’s Leukaemia & Cancer Research Foundation, Kylie Dalton joined Bec in the studio to invite us all to a big family night out!

Sweet sounds take centre stage at the Children’s Leukaemia & Cancer Research Foundation’s (CLCRF) big family event of the year.

The annual CLCRF Family Night Out features the exceptional Perth Symphony Orchestra (PSO) performing two sets of their family favourites. At Gloucester Park on Saturday, November 9,

Kids get free entry while adult tickets are $45. Proceeds from Family Night Out support the outstanding work of the CLCRF, which raises funds for research into childhood cancers.

As well as hearing the world-class PSO perform, families can revel in the festive spirit while supporting a worthwhile cause. They can bring their own picnic (no BYO alcohol) or enjoy a meal from a variety of food trucks on site. Fun children’s activities include face painting, bubbles, cuddly animal farm, bouncy castles and more!

The PSO’s song list includes all-time favourites from shows Frozen, The Lion King and The Greatest Showman and songs originally performed by Katy Perry, David Bowie and Taylor Swift.

Gates open at 4.30pm, with the musical acts starting at 5.30pm.

Trekking for charity: Local great-grandmother to ride 600kms in fight against children’s cancer

Source: Mandurah Mail
Written by: Justin Rake August 27 2019 – 9:35AM

South Yunderup great-grandmother Paula Prynne will prove age is no barrier while raising money for the Children’s Leukaemia and Cancer Research Foundation when she cycles her way from Subiaco to Augusta next month.

The 80-year-old local will be riding a whopping 600 kilometres over six days as part of the annual South West Bike Trek, setting out from the charity’s base on October 13.

From there she and her group of fellow cyclists will hit the road bound for stops in Fairbridge, Preston, Harvey, Eaton, Busselton and Margaret River before finally ending their course in Augusta.

For Prynne, who has been cycling just short of two years now, it will be her longest ride to date.

But the Mandurah Over 55 Cycling Club member holds little nerves, claiming her training has put her in good stead.

“I’m not overly nervous at all, no,” she said.

“I’ve been training quite thoroughly for this, riding roughly 250kms per week, and I’ll be riding with a group so it’s completely safe.

“It’s not compulsory for participants to finish the ride but I’m quite confident I can get it done.”

Prynne took up cycling as a means to improve her overall health back in 2017, with the hobby quickly becoming a passion.

She completed her first charity event after participating in the Great Ocean Ride last year, and plans to make raising money for a worthy cause through cycling an annual tradition.

“I think a lot of it is about having a sense of purpose,” she said.

“I find cycling gives me something to look forward to and I honestly just love it.

“And if I can take the thing I love doing and use it to raise money to help these kids that might be going through hell, then that’s all the better.

“My family are all extremely supportive so that helps a lot too.”

Prynne rides with the Mandurah Over 55 Cycling Club twice a week, while carrying out her own 40km rides almost daily.

It’s a testing workload, but she’s adamant she has no plans to slow up just yet.

“I’ll keep doing it for as long as I can,” she said.

“It’s a real sense of achievement that I find invaluable.”

To find our more about the 2019 South West Bike Trek’s cause, visit swbiketrek.com.au

Local cancer survivor a real role model

If you set your eyes upon this pint-sized pocket rocket today, you could never comprehend the medical struggles she faced at such a young age. Georgia Lowry was born on June 3, 1994 at St John of God Hospital in Subiaco. A younger sister to Grace and a daughter to Ann Marie and Shaun, her birth was the perfect piece of the puzzle for the Mundijong family. However their lives were turned upside down just eight weeks later when Georgia became lethargic and pale.

Blood test results revealed the ugly truth – Georgia had a rare aggressive type of cancer called acute lymphoblastic leukaemia, of which less than two per cent of infantile patients survive.

READ MORE

Rider diagnosed with leukaemia as a child credits her ponies for keeping her alive

Source: Horse & Hound

By Nicola Elson

An Australian rider whose acute leukaemia left her the size of a seven-year-old child credits her ponies for keeping her alive.

Georgia Lowry lives in a rural town just south of Perth, Western Australia. When she was nine weeks old she was diagnosed with acute lymphoblastic leukaemia, an incredibly rare strain of infantile leukaemia which only 2% of children survive.

Before her third birthday, Georgia had been subjected to two bone marrow transplants and several sessions of chemotherapy and radiotherapy. This intensive treatment at such a young age permanently stunted Georgia’s growth: at 24 she is 4’9” tall and weighs 4st 8lb.

READ MORE

Dance for a Cure 2018: Kylie Dalton speaks to 89.7 Twin Cities FM

Earlier today, Kylie Dalton from CLCRF was a special guest of Sue Myc’s mornings show on Twin Cities FM to discuss Dance for a Cure 2018.

Kylie shared her passion and excitement of the event with Twin Cities listeners which supports child cancer research in a fun and engaging way with the general public.

Next Sunday, Forrest Place will be awash with choreographed vibrant dancing from hundreds of families in superhero costumes to raise vital funds and awareness for Telethon.

Listen to the full interview below:

In its fifth year, Dance for A Cure has always left participants thrilled, inspired and eager to keep dancing.

The event has raised almost $80,000 for Children’s Leukaemia and Cancer Research Foundation (CLCRF) to continue their important ground-breaking research so that future generations of children will be the ones to live cancer free.

Experienced choreographer Ashanti Suriyam from The Dance Workshop has crafted this year’s routine to Bonnie Tyler’s chart topping hit, Holding Out for a Hero, for the public to learn before the big day.

A rehearsal will take place the week before on Sunday 11 November at Lathlain Oval, Lathlain.

Five other dance schools from across Perth will also be performing their own showcase routines before ‘exiting stage left’ for the general public to strut their stuff in their hero outfits.

Children’s TV star from the 80’s and Telethon Mascot Fat Cat will dust off his dancing paws and join in with the kids and adults for the main performance.

Dance for A Cure – an interview with Event Organiser Kylie Dalton

Dance For A Cure is an event that raises funds for the Children’s Leukaemia and Cancer Research Foundation.  Taking place on Sunday 18 November in Forest place, this event is for the dancer in all of us.  The theme this year is superheroes, so get your cape on and register now on the Dance For A Cure website.

 Around The Sound spoke to the Dance For A Cure’s coordinator, Kylie Dalton.

Kylie Dalton is a superhero.  It’s a crown that doesn’t rest well on this unassuming woman.  She doesn’t wear the outward mantle, there’s no cape or amulets, no showiness at all, but spend a few moments with Dalton and you know what it’s like to be caught up in her passion and urgency to create change and better lives for the people around her.

Dalton is the coordinator of Dance For A Cure, a yearly event that has been running since 2012 to raise funds for the Children’s Leukaemia and Cancer Research Foundation.  The clue is in the name.  Each year, Dalton organises an event where people come together to dance and raise funds for the Foundation.

“If you only do one thing for charity this year, this should be the one.”

Here are all the reasons why.

It’s fun…
“It’s just fun.  It’s so much fun!” says Dalton.  As a committed non-dancer, even I’m warming up to the idea of joining in at this point in our conversation.  This is a woman how knows how to generate enthusiasm.

“Dance for a Cure has grown from a flash mob I did in 2012.  I had somebody approach me wanting to do this flash mob in honour of a young lady that passed away from leukaemia, and I was like, ‘I can help you with that!’  Me being me, I don’t do anything by halves; I found out later, after I’d organised the event that she was thinking about 25 people, something really small, and 700 people turned up!”

“That first year, everybody had so much fun.  There was so much joy on people’s faces.”

… But it’s not a fun run …
“The whole reason I started Dance For A Cure, is I hate fun runs.  I hate getting up at five in the morning and everybody does fun runs and bike treks, so I thought how do we put music and dance together with something that is so fundamentally important to everyone, and that is families that are going through childhood cancer.  There are so many of them, it’s the most prolific of childhood deaths.”

… And, the serious part, it’s for the kids.
As she begins to speak about her connection with the Children’s Leukaemia and Cancer Research Foundation and the families and children that she works with, those directly affected by cancer, Dalton immediately begins to well up.

“My motivation is that I work with kids that go through cancer.  If I can’t find some joy for them then what are we doing?  And, it’s because they can’t that we should.”

“Nobody tells the family’s story, the constant struggle.  They might be in remission, but they might end up back in hospital the next day, or the next week, or the next year.  And it also doesn’t mean that they then don’t have a lifetime of complications from the chemotherapy.  We’ve got people that have liver damage, there are so many affects from the drugs used.  They might have fought cancer and effectively won, but have they really?  Their whole life is affected.”

At this point, Dalton excuses herself and leaves the table so that she can compose herself.  This is the serious end of the conversation, the part where I learn that, behind the aura of fun, the can-do approach to her life and work, Dalton is a woman whose humanity runs deep.  After a few moments, she returns to our table, continues where she’s left off, the steel in her eyes glistening with residue of her tears.

“It’s a lifetime diagnosis, because the treatment protocols that the kids are getting at the moment are for adults and they just adjust it based on dosage and not necessarily on what a child’s body can cope with.  Children’s Leukaemia, since I’ve known them, have been funding research on how to change the protocols.  They’re so close to clinical trials, but it just takes funding.  We’re this close to finding solutions to being able to lessen the harm on the bodies of children.”

“When they become cancer free for five years they then spend the rest of their lives dealing with what it’s [chemotherapy] done to their body, their livers, their kidneys, their bones, their teeth, their eyesight, their hearing, their learning ability.  So, yes, they might have no more cancer in their body, but they are in and out of hospital for their rest of their lives dealing with the after effects.  If we can find a better way for the treatment protocols that we have now to work for kids, or targeted therapy, their outcomes could improve exponentially, and they can live much better lives than they’re living right now.  So, that’s my motivation.”

There’s not really much more that needs to be said, except to share the logistics.

The event is being held on Sunday 18 November in Forest Place from 9.30 am – 12.00 pm (no early starts).  Registration is via the Dance For A Cure website.

The theme this year is superheroes.

“This year, we’re doing a superhero dance.  So many kids are being pulled out of remission and going back to treatment at the moment, which is really, really heartbreaking, because I work with the kids.  We’ve done yellow T-shirts, which is the childhood cancer colour.  This year I wanted to do something different.  All the kids love to wear superhero outfits, so let’s get everybody dressed up in superhero costumes, or hero costumes, whoever your hero might be.  Our volunteer team chose Bonnie Tyler’s ‘Holding Out For A Hero’ as the song for people to dance to, so it will have wide appeal having been on the Shrek soundtrack and being first released when the parents were a bit younger.”

If you’re thinking of going (you definitely should), here’s a photo of Kylie Dalton.  If you don’t have a superhero costume, just come along as Kylie, she all the superhero you’ll ever need.

Kylie-Dalton

One final thing.  If you’re mortally afraid of dancing, don’t be.

“Don’t get bogged down on knowing the steps or learning the steps.  It’s about supporting an incredible charity, that’s a West Australian charity, that funds research at the Telethon Kid’s Institute, which is where all of the money raised goes.”

“The biggest things it that Dance for a Cure encompasses the whole community so, whatever way you want to be involved, you can be involved.  There’s no barriers to it.”

“We’ve filmed all of the public dance piece and all the choreography is broken down into sections and it’s all online for people to be able to do.”

Register here, register now.

“Our goal is to get a thousand people to this year’s event.”

Let’s make it 10,000.

Source: Around the Sound – October 30, 2018 by Andrew Thompson

Perth set to ‘Dance for a Cure’ to help fight Childhood Cancer

On Sunday 18 November at 9:30am, the City of Perth will be awash with choreographed vibrant dancing from hundreds of families in Forest Place to raise vital funds and awareness for Telethon and help fight a cancer that is still the leading cause of death from disease in Australian children.

Individuals and families are being encouraged to dress up as their favourite hero — whether that’s a superhero such as Spiderman, Superman and Wonder Woman, their favourite sports star or anyone in their lives that they see as a hero — and learn a short, easy to follow, and fun routine.

In its fifth year, Dance for A Cure has always left participants thrilled, inspired and eager to keep dancing.

The event has raised almost $80,000 for Children’s Leukaemia and Cancer Research Foundation (CLCRF) to continue their important ground-breaking research so that future generations of children will be the ones to live cancer free.

Experienced choreographer Ashanti Suriyam from The Dance Workshop has crafted this year’s routine to Bonnie Tyler’s chart topping hit, Holding Out for a Hero, for the public to learn before the big day.

A rehearsal will take place the week before on Sunday 11 November at Lathlain Oval, Lathlain.

Five other dance schools from across Perth will also be performing their own showcase routines before ‘exiting stage left’ for the general public to strut their stuff in their hero outfits.

Children’s TV star from the 80’s and Telethon Mascot Fat Cat will dust off his dancing paws and join in with the kids and adults for the main performance.

The routine choreography has been recorded and is available on the Dance for a Cure website — www.danceforacure.com.au — for participants to practice at home.

Dance for a Cure welcomes a brand new long-term partnership with Telethon and all funds raised from the event will be presented to Telethon to help ensure a better life for children facing this life threatening illness.

Event organiser Kylie Dalton said families and individuals that take part relish the unique experience.

“It has been my honour to organise this event for the families of Perth. My joy is seeing them dance and then hearing them want to do it all over again once the dance is done,” said Kylie.

“It makes all the planning and sleepless nights worth it. We need to keep this in the news so that people never stop looking for a cure to all childhood cancers. What we raise goes directly to our own WA Research projects.”

Individuals and families from all over Perth are strongly encouraged to register to be a part of this great event via the Dance for A Cure website: www.danceforacure.com.au.

Source: Have a Go News – 29

 

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