CLCRF Event

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Record-breaking amount raised at the 2019 Keep the Flame Alive Quiz Night!

This year’s Keep the Flame Alive Quiz Night was a roaring success, with a total of $17,354 raised for child cancer research! This well and truly smashed last year’s total of $16,000. A fantastic night was had by all and with so many games and giveaways throughout the night, there was hardly anyone who went home empty-handed!

“We had a great turn out for our third quiz night at the Perth Football Club. Everyone had a stimulating night and most went home with either a raffle prize or silent auction items.” Says CEO Andrea Alexander.

The winners of the night came down to a nail-biting tie breaker round between Table 3 and Table 1. A big congratulations to Table 3 who came away with the title! We were so impressed with the amount of smart minds in the room, with about 4 tables finishing very close to the winning score. A shout out to Table 10, who were the wooden-spooners of the night, and walked away with – you guessed it – wooden spoons (and chocolate too of course).

As is the case with any successful event, there are a lot of people we need to thank who helped make it possible. We would firstly like to thank everyone who came along and helped us make the night so memorable. We hope all the attendees had just as much fun participating in the quiz night as we did running it. It was so wonderful to see a packed room full of people coming together to support such an important cause.

A huge thank you to all of the local businesses who supported us with amazing prizes. The night definitely would not have been possible without their generosity. We had a total of 78 silent auction items and 54 raffle prizes on offer!

We would also like to thank the very energetic and entertaining Robbie Figg from the Happiness Co who donated his time for us. Robbie was an excellent MC that had everyone entertained from the very beginning right up until the end of the night. Due to overwhelmingly positive responses, he will definitely be asked to come back again next year!

A huge thank you also goes to the Perth Football Club. This was the third year the club has supported our event by kindly donating their fabulous venue.

Our volunteers also deserve a massive pat on the back for all of their efforts leading up to and during the night. The amazing volunteer team worked tirelessly to put this event together and we are so happy that we can say it has well and truly paid off for CLCRF.

We are still reeling with excitement from the event and overwhelmed by the amount of support we received, with all of our tables selling out a month before the event! We definitely have our work cut out for us next year if we are to smash this year’s total funds raised but we are absolutely up for the challenge!

“Our sincere thanks to all who attended, donated and worked above and beyond to make this night a success.” Says Andrea. “We could not do this without you. Stay tuned for next year’s date!”

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South West Bike Trek back for 2019!

After having huge success in previous years, we are so excited for the South West Bike Trek to be back in 2019!

The 2019 South West Bike Trek is set to commence on Sunday 13 October in Subiaco near the Children’s Leukaemia & Cancer Research Foundation office and it will finish in Augusta on Saturday 19 October. The wonderful event has once again been organised by CLCRF member and trek organiser, Eric Maddock, with the help of Lions and Rotary Clubs.

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2018 Southwest Bike Trek raises over $35,000

Kicking, or pedalling, off on Sunday the 7th of October was the 2018 inaugural Southwest Bike Trek. The bike trek started at Mueller Park in Subiaco and finished in Augusta on Saturday the 13th of October.

The trek was organised by Foundation member, Eric Maddock, with the help of Lions and Rotary Clubs.

12 riders completed the 600km bike ride, raising a total of $36,376 to help fund important research into childhood cancers. This brings the total funds raised over the past 16 years close to $700,000!

Riders rode through the wonderful southwest towns of Fairbridge, Harvey, Bunbury, Busselton, Margaret River and Augusta.

Participating in the bike ride this time was Katelyn Lush, Executive Assistant of CLCRF. Katelyn diligently trained for several months with the help of Eric, who she thanks for taking the time to make sure she was prepared.

“In the beginning, I never thought I’d be able to actually do it and travel the entire distance but I am beyond ecstatic and overwhelmed to have reached the end with a fantastic bunch of riders and support crew,” Katelyn says. “You can do anything if you set your mind to it, I did!”

The riders were fortunate enough to enjoy lovely weather throughout the trek. “7 days on the bike and we only had a tiny bit of rain, which for a first-time trekker, was very much appreciated,” Katelyn says.

The team were overwhelmed by the amount of support they received from local communities of WA’s South West during the trek, who deserve acknowledgement.

“The support from all the Lions and Rotary clubs as well as the Binningup Senior Citizens, Mooba Coffee, Jarra Infusions, The Beach Shack Cafe and Swings Kitchen made sure no rider went hungry. It would also be remiss of me not to thank Bunbury Toyota for providing a support vehicle and PEACH for their funding of lights, first aid kit and signs.” Says Eric.

It was also great to see local schools getting involved, including St Joseph’s School in Waroona and Harvey Primary school who brought 65 kids and the principal for a bit of fresh air and exercise.

The Foundation would like to commend the efforts of all who participated in the Southwest Bike Trek and we look forward to another successful bike ride in 2019!

Email swbiketrek@gmail.com to register your interest.

 

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2018 Annual General Meeting

On 5 December at the Wembley Golf Course, Foundation members and invited guests attended the 25th Annual General Meeting (AGM) of the Children’s Leukaemia & Cancer Research Foundation.

Geoff Cattach, Chairman, and Andrea Alexander, Executive Officer, each gave their reports on the Foundation’s operations during 2017 and 2018. Geoff proudly reported that the Foundation managed to maintain and in some instances increase research funding, even with the challenges that today’s economy has had on community and corporate support.

The AGM was a great opportunity to address the Foundation’s transition to a Million Dollar Partner of Telethon. “With the additional $500K triggered by our partnership with Telethon, we have been able to expand our research endeavours to continue paediatric brain cancer research as well as new funding for paediatric sarcoma research,” Said Geoff.

Dr Rishi Sury Kotecha was also at the 2018 AGM to update the Foundation about the important research he is conducting at the Children’s Leukaemia & Cancer Research Foundation Lab at the Telethon Kids Institute. Rishi explained his current studies into a key new drug, Blinatumomab, and whether it can be safely used to treat infants with acute lymphoblastic leukaemia.

The AGM was followed by the customary CLCRF Christmas Cocktail Party, where members enjoyed beautiful canapés and drinks overlooking the picturesque golf course and lake.

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Dance for A Cure 2018 Sadly Cancelled

The Children’s Leukaemia and Cancer Research Foundation (CLCRF) regrets to announce the cancellation of Dance for A Cure for 2018. Due to lack of registrations, the event will be unable to take place on Sunday 18 November.

The event was set to raise funds for Telethon and CLCRF, a charity that funds research into cancers that affect children and their families. Childhood cancer is the single greatest cause of death from disease in Australian children, with three losing their lives to cancer every week.

Event organiser Kylie Dalton is disheartened by the event outcome stating that sadly to make the event successful, so many more registrations were needed.

“It takes a long time and a lot of people to put an event like this on, so when we are faced with a situation like this it breaks all of our hearts. I am just devastated for the dancers and the families that did register early, and have been practising to get their steps right. I know we will find a way for Dance for A Cure to come back, just maybe not in this format. I want to personally thank my volunteer team that have worked alongside of me to get us to this point and gratefully know you will come back to help with whatever we do next.”

Refunds are being offered to all registrants. An email has been sent out to all that registered, explaining the process for either seeking a refund or donating their registration cost to CLCRF. Information regarding this process can also be found on the Dance for A Cure website: danceforacure.com.au.

CLCRF Chief Executive Officer, Andrea Alexander is grateful for the efforts of all involved in putting together this event.

“We would like to thank all of the volunteers that have invested hours into Dance for A Cure and we share their disappointment and sadness that it was unable to go ahead. Thanks also to our sponsors who once again supported this event, we hope to work with them again in the future on other projects.”

The Children’s Leukaemia and Cancer Research Foundation sincerely apologise for the cancellation, and hope that your support for the charity will continue. With your contribution, CLCRF can continue making a difference in the lives of children and families struggling with cancer.

Should you have further questions about this event cancellation, please contact event organisers.

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Dance for A Cure – an interview with Event Organiser Kylie Dalton

Dance For A Cure is an event that raises funds for the Children’s Leukaemia and Cancer Research Foundation.  Taking place on Sunday 18 November in Forest place, this event is for the dancer in all of us.  The theme this year is superheroes, so get your cape on and register now on the Dance For A Cure website.

 Around The Sound spoke to the Dance For A Cure’s coordinator, Kylie Dalton.

Kylie Dalton is a superhero.  It’s a crown that doesn’t rest well on this unassuming woman.  She doesn’t wear the outward mantle, there’s no cape or amulets, no showiness at all, but spend a few moments with Dalton and you know what it’s like to be caught up in her passion and urgency to create change and better lives for the people around her.

Dalton is the coordinator of Dance For A Cure, a yearly event that has been running since 2012 to raise funds for the Children’s Leukaemia and Cancer Research Foundation.  The clue is in the name.  Each year, Dalton organises an event where people come together to dance and raise funds for the Foundation.

“If you only do one thing for charity this year, this should be the one.”

Here are all the reasons why.

It’s fun…
“It’s just fun.  It’s so much fun!” says Dalton.  As a committed non-dancer, even I’m warming up to the idea of joining in at this point in our conversation.  This is a woman how knows how to generate enthusiasm.

“Dance for a Cure has grown from a flash mob I did in 2012.  I had somebody approach me wanting to do this flash mob in honour of a young lady that passed away from leukaemia, and I was like, ‘I can help you with that!’  Me being me, I don’t do anything by halves; I found out later, after I’d organised the event that she was thinking about 25 people, something really small, and 700 people turned up!”

“That first year, everybody had so much fun.  There was so much joy on people’s faces.”

… But it’s not a fun run …
“The whole reason I started Dance For A Cure, is I hate fun runs.  I hate getting up at five in the morning and everybody does fun runs and bike treks, so I thought how do we put music and dance together with something that is so fundamentally important to everyone, and that is families that are going through childhood cancer.  There are so many of them, it’s the most prolific of childhood deaths.”

… And, the serious part, it’s for the kids.
As she begins to speak about her connection with the Children’s Leukaemia and Cancer Research Foundation and the families and children that she works with, those directly affected by cancer, Dalton immediately begins to well up.

“My motivation is that I work with kids that go through cancer.  If I can’t find some joy for them then what are we doing?  And, it’s because they can’t that we should.”

“Nobody tells the family’s story, the constant struggle.  They might be in remission, but they might end up back in hospital the next day, or the next week, or the next year.  And it also doesn’t mean that they then don’t have a lifetime of complications from the chemotherapy.  We’ve got people that have liver damage, there are so many affects from the drugs used.  They might have fought cancer and effectively won, but have they really?  Their whole life is affected.”

At this point, Dalton excuses herself and leaves the table so that she can compose herself.  This is the serious end of the conversation, the part where I learn that, behind the aura of fun, the can-do approach to her life and work, Dalton is a woman whose humanity runs deep.  After a few moments, she returns to our table, continues where she’s left off, the steel in her eyes glistening with residue of her tears.

“It’s a lifetime diagnosis, because the treatment protocols that the kids are getting at the moment are for adults and they just adjust it based on dosage and not necessarily on what a child’s body can cope with.  Children’s Leukaemia, since I’ve known them, have been funding research on how to change the protocols.  They’re so close to clinical trials, but it just takes funding.  We’re this close to finding solutions to being able to lessen the harm on the bodies of children.”

“When they become cancer free for five years they then spend the rest of their lives dealing with what it’s [chemotherapy] done to their body, their livers, their kidneys, their bones, their teeth, their eyesight, their hearing, their learning ability.  So, yes, they might have no more cancer in their body, but they are in and out of hospital for their rest of their lives dealing with the after effects.  If we can find a better way for the treatment protocols that we have now to work for kids, or targeted therapy, their outcomes could improve exponentially, and they can live much better lives than they’re living right now.  So, that’s my motivation.”

There’s not really much more that needs to be said, except to share the logistics.

The event is being held on Sunday 18 November in Forest Place from 9.30 am – 12.00 pm (no early starts).  Registration is via the Dance For A Cure website.

The theme this year is superheroes.

“This year, we’re doing a superhero dance.  So many kids are being pulled out of remission and going back to treatment at the moment, which is really, really heartbreaking, because I work with the kids.  We’ve done yellow T-shirts, which is the childhood cancer colour.  This year I wanted to do something different.  All the kids love to wear superhero outfits, so let’s get everybody dressed up in superhero costumes, or hero costumes, whoever your hero might be.  Our volunteer team chose Bonnie Tyler’s ‘Holding Out For A Hero’ as the song for people to dance to, so it will have wide appeal having been on the Shrek soundtrack and being first released when the parents were a bit younger.”

If you’re thinking of going (you definitely should), here’s a photo of Kylie Dalton.  If you don’t have a superhero costume, just come along as Kylie, she all the superhero you’ll ever need.

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One final thing.  If you’re mortally afraid of dancing, don’t be.

“Don’t get bogged down on knowing the steps or learning the steps.  It’s about supporting an incredible charity, that’s a West Australian charity, that funds research at the Telethon Kid’s Institute, which is where all of the money raised goes.”

“The biggest things it that Dance for a Cure encompasses the whole community so, whatever way you want to be involved, you can be involved.  There’s no barriers to it.”

“We’ve filmed all of the public dance piece and all the choreography is broken down into sections and it’s all online for people to be able to do.”

Register here, register now.

“Our goal is to get a thousand people to this year’s event.”

Let’s make it 10,000.

Source: Around the Sound – October 30, 2018 by Andrew Thompson

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South West Bike Trek: Eric Maddock speaks to 98five Sonshine FM

CLCRF Foundation member and South West Bike Trek coordinator Eric Maddock took to the microphone a couple of weeks ago on Mornings With Mike on 98five Sonshine FM to share his insights into next week’s South West Bike Trek.

In case you missed the interview you can listen below:

Next Sunday, 12 riders will embark on a six-day bike ride from Subiaco to Augusta for the Southwest Bike Trek to raise vital funds and awareness for the Children’s Leukaemia and Cancer Research Foundation (CLCRF).

The journey across WA’s iconic South West region, which is more than 300km, will start at Mueller Park, Subiaco, stopping off en route at Fairbridge, Preston Beach, Harvey, Eaton, Busselton and Margaret River before finishing at Cape Leeuwin Lighthouse, Augusta on Saturday 13 October.

Childhood cancer is the single greatest cause of death from disease in Australian children, with three children losing their lives to cancer every week. Childhood cancer is second only to breast cancer in terms of the number of years of life lost by the disease.

Donations to the Children’s Leukaemia and Cancer Research Foundation (Inc.) help fund valuable scientific research into childhood cancers. Over the past 30 years CLCRF has made amazing breakthroughs into the treatment children receive. It is because of this research that those children have an opportunity to live long and fulfilling lives.

The first ever SouthWest Bike Trek took place back in 2002 and has raised just under $700,000 for child cancer research projects over 16 years.

If you would like to donate to help Eric and his fellow riders to raise vital funds please donate now.

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Katie Lush talks to 89.7fm about the South West Bike Trek

CLCRF’s very own Executive Assistant, Katie Lush, is joining this year’s South West Bike Trek. This morning Katie spoke with Sue Myc on 89.7 Twin Cities FM’s morning show about the ride, what she’s looking forward to and why she feels the need to ride for such a good cause.

In case you missed the interview you can listen below:

 

On Sunday 7 October, 12 riders will embark on a six-day bike ride from Subiaco to Augusta for the Southwest Bike Trek to raise vital funds and awareness for the Children’s Leukaemia and Cancer Research Foundation (CLCRF).

The journey across WA’s iconic South West region, which is more than 300km, will start at Mueller Park, Subiaco, stopping off en route at Fairbridge, Preston Beach, Harvey, Eaton, Busselton and Margaret River before finishing at Cape Leeuwin Lighthouse, Augusta on Saturday 13 October.

Childhood cancer is the single greatest cause of death from disease in Australian children, with three children losing their lives to cancer every week. Childhood cancer is second only to breast cancer in terms of the number of years of life lost by the disease.

Donations to the Children’s Leukaemia and Cancer Research Foundation (Inc.) help fund valuable scientific research into childhood cancers. Over the past 30 years CLCRF has made amazing breakthroughs into the treatment children receive. It is because of this research that those children have an opportunity to live long and fulfilling lives.

The first ever SouthWest Bike Trek took place back in 2002 and has raised just under $700,000 for child cancer research projects over 16 years.

If you would like to donate to help Katie and her fellow riders raise vital funds please donate now.

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Register now for the 2018 Friends of Finlay Camp Out!

Join us on Saturday 27 October, 2018 for the fun and exciting  Friends of Finlay Camp Out!

We had a fabulous time camping out with our little ambassador, Finlay Higgs, last year. This year you are invited to the 2018 Friends of Finlay Camp Out on Saturday 27 October at Lathlain Park.

The Camp Out highlights the need for increased research into Hepatoblastoma and all money raised will go to the Children’s Leukaemia & Cancer Research Foundation (Inc.).

It’s going to be a bigger event this year with: Perth Demons footy kicking, a Jumpy Castle, Superhero Entertainers, Giant Games, live music, Face Painting and BBQ dinner!

We have amazing custom-made Friends of Finlay Sleeping Bags on sale. They were a massive hit last year, so don’t miss out and purchase your Friends of Finlay Sleeping Bags filled with warm and comfortable duck down for children!

Be quick and register now!

Event: Friends of Finlay Camp Out 2018
Date: Sat 27- Sun 28 Oct
Start Time: Saturday 2:00PM
End Time: Sunday 8:30AM
Location: Lathlain Park, Goddard St, Lathlain WA
Cost: $25 for Adults. $15 for Children (11-16). FREE for children under 10.
Register at: Camp Out Registration

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$16,000 Raised from the Dance for a Cure Quiz Night!

Our Dance for A Cure Quiz Night on Friday 8 June at Lathlain Function Centre was a phenomenal success and we raised $16,000!

We would like to thank everybody who helped us make it a memorable night!

It was very encouraging to see 50 per cent of the room return from the previous year. Our goal this year was to beat last year’s incredible total of $11,000 raised and we definitely achieved our goal.

The money we raised will go towards funding the Dance for A Cure 2018 event, this year being held in November in Forrest Place.

So many wonderful people gave generously and made the night an event to remember. With a three-way tie for first place coming down to a heads and tails toss and a booming $16,000 raised, it was a fantastic night. Looks like we’ll have our work cut out for us next year after smashing last year’s total!

Please keep an eye out for our official announcement this week of the Dance for A Cure 2018 event, the music, the very special guest dancer and how our Perth dance schools can get involved. If you haven’t joined our closed group head over now to: https://www.facebook.com/groups/1805888859706788/?ref=br_rs