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Tweaking immunotherapy to tackle sarcoma head-on

Published: April 15th, 2019

CLCRF are proud to be working with Sock it to Sarcoma to help fund research into sarcoma at the Telethon Kids Institute.

Sarcoma is a form of cancer that occurs in the bones and soft tissues such as fat and muscle. Despite making up 15-20% of cancers in children, sarcoma is still relatively unknown and under-researched.

Our funding has allowed researchers to develop a way to tweak immunotherapy to allow for more effective treatment for the cancer.

“There is no one else in Australia really doing this therapeutic work…” Says Professor Terry Johns, head of Telethon Kids Cancer Centre.

“The current treatments are also very nasty and aggressive, and if we can improve them so children don’t have to have such horrible chemo-therapy then that would also be useful.”

The Foundation is proud to be helping fund this important research in order to improve the treatment and survival rates for children battling sarcoma.

Donations made to CLCRF will go towards funding important research into childhood cancer and can be made here.

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Rider diagnosed with leukaemia as a child credits her ponies for keeping her alive

Published: April 13th, 2019

Source: Horse & Hound 13 April, 2019 10:11

By Nicola Elson

An Australian rider whose acute leukaemia left her the size of a seven-year-old child credits her ponies for keeping her alive.

Georgia Lowry lives in a rural town just south of Perth, Western Australia. When she was nine weeks old she was diagnosed with acute lymphoblastic leukaemia, an incredibly rare strain of infantile leukaemia which only 2% of children survive.

Before her third birthday, Georgia had been subjected to two bone marrow transplants and several sessions of chemotherapy and radiotherapy. This intensive treatment at such a young age permanently stunted Georgia’s growth: at 24 she is 4’9” tall and weighs 4st 8lb.

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Spoil mum this Mother’s Day!

Published: April 11th, 2019

Not sure what to give mum for Mother’s Day? She deserves the absolute best so why not give her a 2019 | 2020 Entertainment™ membership this Mother’s Day – Sunday 12 May.

It’s the gift that keeps giving throughout the year with over $20,000 worth of value at the best restaurants, cafes, entertainment, travel, shopping and even the Best of Bali in the Perth Membership! All of this value for only $70!

Not only is the membership great value for money, but 20% of every membership sold also contributes to vital research into childhood cancers. The Foundation has been selling Entertainment Books to our supporters for over 20 years and in the past ten years has received over $42,000 to assist with funding research into childhood cancers!

The Entertainment™ Digital Membership

The Entertainment™ Digital Membership puts the value of the traditional Entertainment™ Book into your Apple or Android device, and also allows you to:

– Show and save using your Apple or Android device, with no Card or Voucher to present
– Search for nearby businesses in the Entertainment™ program
– Share your Membership with another family member.

The Perth Entertainment™ Membership covers the following areas: Including Mandurah, Bunbury, Busselton, Dunsborough, Margaret River, PLUS the best of Bali. You can also purchase an Entertainment™ Membership for other states and New Zealand!

The Entertainment™ Book Membership

The Entertainment™ Book comes with the Gold Card and vouchers, and contains over $20,000 worth of valuable up to 50% off and 2-for-1 offers for many of the best restaurants, cafés, arts, attractions, hotels, travel, shopping and much more!

Give your mum the gift that keeps giving this Mother’s Day. Click on the link below to find out more!
Get your Entertainment Membership now! 

“The Entertainment Membership is great value. With lots of instant savings. It more than outweighs the price. There is something for everyone – causal and fine dining, adventure and family activities. I couldn’t live without it. Plus, I get to support a good cause.” – Zana B. Sydney

 

 

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Run For a Reason with CLCRF

Published: April 8th, 2019

Now in its 10th year, the HBF Run for a Reason is Western Australia’s most well-loved event. Over a decade, participants and supporters have raised over $9 Million for more than 190 charities! And the 2019 event is going to be extra special with the goal to smash $10 Million raised in 10 years.

Each year thousands of people of all ages flood the streets of the CBD to get active while raising money for some amazing causes. Event course distances include a 4k, 12k, and 21k half marathon which can be run or walked.

Help make a difference to children and families across Australia with leukaemia by choosing the Children’s Leukaemia & Cancer Research Foundation as your reason when you take part in the HBF Run for a Reason – Sunday, 19 May 2019.

Last year, 20 runners raised a massive $4,443 for the foundation which went directly into child cancer research. With the $10 million goal in sight for HBF, we are hopeful in smashing last years amount! Find out how you can help below!

How to set up a HBF Run for a Reason supporter page
Setting up an online supporter page for HBR Run for a Reason is easy!

Step 1: Register as an event participant online at the Run for a Reason official website.
Step 2: As CLCRF is a non-featured charity, skip the charity selection part of the Run for a Reason registration.
Step 3: After completing the event registration form, follow the prompts to visit the Run for a Reason fundraising website.
Step 4: Sign up to create your personal Run for a Reason supporter page and select us, Children’s Leukaemia & Cancer Research Foundation as your charity to support.
Step 5: Personalise your page with a profile photo and tell everyone why you’re supporting CLCRF.
Step 6: Share your unique supporter page link with your friends, family and colleagues, via email and social media.

Don’t go at it alone, gather the crew and walk, jog or run as a team. Family, friends, work colleagues, we’d love to see everyone at HBF’s 10th-anniversary celebration!

 

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Registrations now open for Sydney’s annual Pub2Pub Charity Fun Run!

Published: April 4th, 2019

On Sunday, August 25 this year, the iconic Pub2Pub Charity Fun Run celebrates its 27th year of raising vital funds for Australian charities on Sydney’s Northern Beaches. Organised by the Rotary Club of Brookvale, over those 27 years, the event has raised over $3.5 million dollars for wonderful organisations.

Whether you’re an avid runner or leisurely walker, the Pub2Pub Charity Fun Run and Festival is the perfect event for you. Choose from three different event options:

  • 13km run from Dee Why Beach to Newport Beach
  • 6km run from Warriewood to Newport Beach
  • 3km run or walk from Mona Vale to Newport Beach

New this year, Pub2Pub is also offering a Para Run in all three-course distances!

By taking part in this event and supporting the Children’s Leukaemia & Cancer Research Foundation, you will be helping us fund vital child cancer research. Help us get new treatments to patients faster. Find out how to support us below!

How to set up a Pub2Pub supporter page
Setting up an online supporter page in the Pub2Pub is easy!

Step 1: Register as an event participant online at the Pub2Pub official website.
Step 2: As CLCRF is a non-featured charity, skip the charity selection part of the Pub2Pub registration.
Step 3: After completing the event registration form, follow the prompts to visit the Pub2Pub fundraising website.
Step 4: Create your personal Pub2Pub supporter page and select us, Children’s Leukaemia & Cancer Research Foundation as your charity to support.
Step 5: Personalise your page with a profile photo and tell everyone why you’re supporting CLCRF.
Step 6: Share your unique supporter page link with your friends, family and colleagues, via email and social media.

 

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Limited Edition Friends of Finlay Sleeping Bags Available Now!

Published: March 20th, 2019

With so much more awareness and funds to be raised for Hepatoblastoma, the Friends of Finlay Camp Out project is far from over. We’re now inviting you to host your very own family camp out at home with our Friends of Finlay sleeping bags!

Our limited edition Friends of Finlay sleeping bags are available to purchase online, with all funds going towards continuing the important research into childhood cancer at CLCRF.

These sleeping bags are custom-made and can comfortably fit children under 140cm in height. Get your children one of these warm and cozy sleeping bags and they won’t want to sleep anywhere else!

Sleeping bags can be either collected from the Children’s Leukaemia & Cancer Research Foundation office or we can post it to you for an additional postage fee.

Find out more and purchase your limited edition sleeping bag today: http://bit.ly/2TEHkcU

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2018 Southwest Bike Trek raises over $35,000

Published: March 14th, 2019

Kicking, or pedalling, off on Sunday the 7th of October was the 2018 inaugural Southwest Bike Trek. The bike trek started at Mueller Park in Subiaco and finished in Augusta on Saturday the 13th of October.

The trek was organised by Foundation member, Eric Maddock, with the help of Lions and Rotary Clubs.

12 riders completed the 600km bike ride, raising a total of $36,376 to help fund important research into childhood cancers. This brings the total funds raised over the past 16 years close to $700,000!

Riders rode through the wonderful southwest towns of Fairbridge, Harvey, Bunbury, Busselton, Margaret River and Augusta.

Participating in the bike ride this time was Katelyn Lush, Executive Assistant of CLCRF. Katelyn diligently trained for several months with the help of Eric, who she thanks for taking the time to make sure she was prepared.

“In the beginning, I never thought I’d be able to actually do it and travel the entire distance but I am beyond ecstatic and overwhelmed to have reached the end with a fantastic bunch of riders and support crew,” Katelyn says. “You can do anything if you set your mind to it, I did!”

The riders were fortunate enough to enjoy lovely weather throughout the trek. “7 days on the bike and we only had a tiny bit of rain, which for a first-time trekker, was very much appreciated,” Katelyn says.

The team were overwhelmed by the amount of support they received from local communities of WA’s South West during the trek, who deserve acknowledgement.

“The support from all the Lions and Rotary clubs as well as the Binningup Senior Citizens, Mooba Coffee, Jarra Infusions, The Beach Shack Cafe and Swings Kitchen made sure no rider went hungry. It would also be remiss of me not to thank Bunbury Toyota for providing a support vehicle and PEACH for their funding of lights, first aid kit and signs.” Says Eric.

It was also great to see local schools getting involved, including St Joseph’s School in Waroona and Harvey Primary school who brought 65 kids and the principal for a bit of fresh air and exercise.

The Foundation would like to commend the efforts of all who participated in the Southwest Bike Trek and we look forward to another successful bike ride in 2019!

Email [email protected] to register your interest.

 

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Dr. Rishi and his team get published!

Published: March 13th, 2019

The Foundation received some excellent news earlier this year that a manuscript from Dr Rishi Kotecha and his research team at the Telethon Kids Institute has been provisionally accepted for publication in a high impact journal.

The manuscript is being published in Haematologica, a journal for the broad field of hematology that reports on novel important findings in basic, clinical and translational research.

The manuscript came about from the team’s research project funded by CLCRF to identify novel therapeutic approaches for patients with high-risk infant leukaemia. The team has screened many new drugs and the manuscript focuses on how a particular drug, called Romidepsin, has shown benefits in pre-clinical models of infant leukaemia.

Being published in a high impact journal is important for scientists as it allows the dissemination of information discovered in the laboratory to the broader public of other scientists and other clinicians.

“Without this information being shared, it won’t be translated to the clinical setting. If everyone’s aware of the information that you discover, then they can translate it to have a direct effect on the patients with cancer.” Rishi says. 

Important research projects like this would not be possible without the continued support and funding from CLCRF. “Without the support of CLCRF, our program would not exist essentially,” Rishi says. “Without the support that we get, we just wouldn’t be able to conduct the research we’re doing today.”

The Foundation would like to commend Rishi and his team for this excellent achievement. We look forward to continuing funding the research project and learning more about their developments in infant leukaemia research.

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Congratulations to the Raffle Winner!

Published: March 11th, 2019

Our ‘Lucky Numbers’ Raffle #47 (Permit No LS211271018) was drawn on Thursday 28 February. The winning ticket was no. 21042.

The Winner of the $15,000 CASH has now been contacted and is extremely HAPPY! Our next raffle has started and is drawn on 28 June – if you would like to purchase tickets – please ring our Raffle Hotline 1300 139 651 or head to our raffle website.

Thanks to all who supported this raffle and helped raised funds for vital research into childhood cancers.

 

 

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Kai’s Big Gold Ball Announcement

Published: March 1st, 2019

After achieving huge success last year, the 2nd annual Kai’s Big GOLD Ball will be held on Saturday the 31st of August at the BelleVue Ball Room at Perth Convention and Exhibition Centre. The ball was created in honour of Kai Nell, a brave little boy who lost his battle with Acute Myeloid Leukaemia in January of 2017.

The first annual Kai’s Big Gold Ball raised over $35,000 for the Cancer Council WA. This year’s ball aims to make an even bigger impact and all funds raised will be going towards the important research into childhood cancer at CLCRF.

Kai’s family, or #teamkai, came up with the idea of the Big GOLD Ball as a way to make Kai’s short life make a difference. Kai’s journey was one that touched many hearts and unfortunately, Kai and his family are not alone with their experience. By using his memory to raise awareness and funds for childhood cancer research, #teamkai are bringing hope to children and families who are fighting the same battle they did.

Guests of Kai’s Big GOLD Ball will enjoy a delicious three-course meal, a five-hour drink package, live entertainment and a DJ. There will also be both a silent and live auction to add to the excitement of the night. The event will begin with pre-drinks at 6:30pm and will officially kick off at 7pm until midnight.

If last year’s event is anything to go by, this year’s ball is guaranteed to be an incredibly fun and meaningful night. We can’t think of a better excuse to get dressed up and go out with a group of friends!

Tickets for the ball are available here, with sponsorship packages also available.

Can’t make it to the ball but still want to support #teamkai? Donations to the cause can be made here. Please put #teamkai in the comments so we know why you’re donating.

Date:

Saturday, 31 August 2019 at 6:30PM

Location:

The BelleVue Ball Room, Perth Convention and Exhibition Centre

21 Mounts Bay Road, Perth WA 6000

 

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