News

Jackson’s Story

Published: May 13th, 2019

Jackson is one of over 600 Australian children who are diagnosed with cancer every year. Just like many of these children, Jackson has spent the majority of his short life in hospital fighting the horrible disease.

Jackson’s Story begins with a suspected stomach bug when he was just 7 months old. Two different GPs brushed it off as a virus but Jackson’s mum Michelle remained concerned when his stomach seemed swollen and the vomiting and diarrhoea continued. After the second GP visit, Jackson vomited all over the floor at Woolworths and his eyes started to roll to the back of his head. A nearby midwife told Michelle to take Jackson to the hospital immediately.

“I kept saying Jackson, Jackson to try and get him to respond but he wasn’t really responding.” Says Michelle. “I just started panicking and panicking more now that a nurse had seen him and was worried enough to tell me to go to hospital.”

Michelle took Jackson to Bunbury Hospital and after being concerned about dark bruises on the top of his forehead, he was sent to a CT scan. A paediatrician then examined Jackson and Michele asked if she should be calling her husband Marc, who was working away, to come home.

“I remember the doctor looking up at me and the look on his face said everything. Without seeing the blood results, he was 99% sure that Jackson had leukaemia.”

They went straight to the Emergency Department at Perth’s Children’s Hospital where Jackson was diagnosed with both Acute Lymphoblastic Leukaemia (ALL) and Acute Myeloid Leukaemia (AML). Since his diagnosis Jackson has experienced many setbacks on his treatment journey, including a staph infection, a murmur in his heart and a relapse of AML in his right testis. He has undergone intense high dose chemotherapy, a bone marrow transplant and radiation therapy.

Jackson and his family still have a tough road ahead of them to beat this horrible disease. The family currently have to wait another three months to see if Jackson’s bone marrow transplant was successful, in the hope that he might be in complete remission.

To ensure CLCRF can continue to fund life-changing research to offer hope to families like Jackson’s, we need your help. By making a tax-deductible donation before June 30, you will be helping to make a huge difference.

Read more about Jackson’s story and donate today

 

Hunter Reaches a Milestone on his Road to Recovery

Published: May 7th, 2019

We received some great news this week with six-year-old Hunter reaching a special milestone in his cancer treatment and being the first to ring Perth Children’s Hospital’s new treatment bell.

Friday 3 May marked 100 days since Hunter’s life-saving bone marrow transplant. On the very same day, the oncology ward at Perth’s Children’s Hospital unveiled its first ever treatment bell.

“The bell is a symbol that’s rung at the end of treatment to recognise everything that the child and the family has gone through in their cancer journey.” Says Dr Annie Ryan, Paediatric Oncologist.

The first 100 days after a bone marrow transplant are said to be the most critical and although Hunter is not in the clear yet, the end of his tough road to recovery is now in sight. This was excellent news for Hunter’s family who were devastated last September when Hunter relapsed after almost two years of treatment for acute lymphoblastic leukemia.

Hunter celebrated this big achievement with a limo ride and a swim in his friend’s pool. This is the first time Hunter has been healthy enough to swim since his diagnosis at the age of three.

By helping fund the important research into childhood cancer by CLCRF, more children like Hunter can reach milestones in their cancer treatment journeys. If you would like to make a donation to the Foundation, head to our donate page.

Donation from Bunbury Rotary Club

Published: May 2nd, 2019

The Foundation recently received a generous donation of $2,500 from the Bunbury Rotary Club. CLCRF Chairman Geoff Cattach was there to accept the donation at a club meeting earlier this month where he also gave a talk on the great work being done by the Foundation.

Every year, the Bunbury Rotary Club holds a Golf Day organised through club member John Hovey and the Hovey Group, a large family owned civil construction business in Bunbury. Proceeds of the annual Golf Day are donated to local charity groups.

Donations like this are so important for helping the foundation continue the ground-breaking research into childhood cancers. As a great way to give back to the community, this is something all community groups and organisations should consider.

CLCRF would like to sincerely thank the Bunbury Rotary Club. They have been a valuable supporter of the Foundation and we appreciate their continued generosity.

Telethon Giving Ceremony / Beneficiaries Function

Published: April 24th, 2019

Chairman Geoff Cattach and CEO Andrea Alexander recently attended the 2019 Telethon Giving Ceremony at Crown Perth. The ceremony, led by Telethon Trust Chairman Richard Goyder, was a great chance to see how CLCRF’s Million Dollar Partnership with Telethon has helped so many.

The record breaking $38 million dollars raised by generous West Australians last year was handed over to 51 beneficiaries across WA. These included hospitals, medical facilities, research institutes and community organisations. All these beneficiaries provide vital services, therapies and equipment for children in WA.

Prime Minister Scott Morrison was the guest of honour at the giving ceremony and he said he felt humbled, overwhelmed and emotional to hear about the work done by WA organisations to help sick children and families.

“It’s not just the money that helps.” Says Morrison “$38 million is a tremendous achievement but it’s what’s behind the money that I think is truly special and is worth appreciating.”

Professor Jonathon Carapetis of the Telethon Kids Institute said the money raised by Telethon has helped the research centre, like other beneficiaries, to change children’s lives.

The ceremony was a wonderful celebration and CLCRF is honoured to be a Million Dollar Partner with Telethon. We look forward to raising more money for the important research into childhood cancer in this exciting partnership.

Registrations are now open for the 2019 Sun-Herald City2Surf!

Published: April 17th, 2019

The Sun-Herald City2Surf presented by Westpac has raised over $40 million since 2008 when the fundraising tally was first recorded. This year City2Surf aims to help raise another $5,000,000 for more than 900 charities.

Join CLCRF at the iconic Sun-Herald City2Surf, Australia’s biggest fun run. Be one of 80,000 people to make their way from Hyde Park to the most spectacular finish line in the world, Bondi Beach!

By taking part in this event, you will be helping us fund vital child cancer research. Help us get new treatments to patients faster. Find out how to support us below!

How to set up a City2Surf supporter page:
Setting up an online supporter page in the City2Surf is easy!

Step 1: Register as an event participant online at the City2Surf official website.
Step 2: As CLCRF is a non-featured charity, skip the charity selection part of the City2Surf registration.
Step 3: After completing the event registration form, follow the prompts to visit the City2Surf fundraising website.
Step 4: Create your personal City2Surf supporter page and select us, Children’s Leukaemia & Cancer Research Foundation as your charity to support.
Step 5: Personalise your page with a profile photo and tell everyone why you’re supporting CLCRF.
Step 6: Share your unique supporter page link with your friends, family and colleagues, via email and social media.

Tweaking immunotherapy to tackle sarcoma head-on

Published: April 15th, 2019

CLCRF are proud to be working with Sock it to Sarcoma to help fund research into sarcoma at the Telethon Kids Institute.

Sarcoma is a form of cancer that occurs in the bones and soft tissues such as fat and muscle. Despite making up 15-20% of cancers in children, sarcoma is still relatively unknown and under-researched.

Our funding has allowed researchers to develop a way to tweak immunotherapy to allow for more effective treatment for the cancer.

“There is no one else in Australia really doing this therapeutic work…” Says Professor Terry Johns, head of Telethon Kids Cancer Centre.

“The current treatments are also very nasty and aggressive, and if we can improve them so children don’t have to have such horrible chemo-therapy then that would also be useful.”

The Foundation is proud to be helping fund this important research in order to improve the treatment and survival rates for children battling sarcoma.

Donations made to CLCRF will go towards funding important research into childhood cancer and can be made here.

Rider diagnosed with leukaemia as a child credits her ponies for keeping her alive

Published: April 13th, 2019

Source: Horse & Hound 13 April, 2019 10:11

By Nicola Elson

An Australian rider whose acute leukaemia left her the size of a seven-year-old child credits her ponies for keeping her alive.

Georgia Lowry lives in a rural town just south of Perth, Western Australia. When she was nine weeks old she was diagnosed with acute lymphoblastic leukaemia, an incredibly rare strain of infantile leukaemia which only 2% of children survive.

Before her third birthday, Georgia had been subjected to two bone marrow transplants and several sessions of chemotherapy and radiotherapy. This intensive treatment at such a young age permanently stunted Georgia’s growth: at 24 she is 4’9” tall and weighs 4st 8lb.

READ MORE

Spoil mum this Mother’s Day!

Published: April 11th, 2019

Not sure what to give mum for Mother’s Day? She deserves the absolute best so why not give her a 2019 | 2020 Entertainment™ membership this Mother’s Day – Sunday 12 May.

It’s the gift that keeps giving throughout the year with over $20,000 worth of value at the best restaurants, cafes, entertainment, travel, shopping and even the Best of Bali in the Perth Membership! All of this value for only $70!

Not only is the membership great value for money, but 20% of every membership sold also contributes to vital research into childhood cancers. The Foundation has been selling Entertainment Books to our supporters for over 20 years and in the past ten years has received over $42,000 to assist with funding research into childhood cancers!

The Entertainment™ Digital Membership

The Entertainment™ Digital Membership puts the value of the traditional Entertainment™ Book into your Apple or Android device, and also allows you to:

– Show and save using your Apple or Android device, with no Card or Voucher to present
– Search for nearby businesses in the Entertainment™ program
– Share your Membership with another family member.

The Perth Entertainment™ Membership covers the following areas: Including Mandurah, Bunbury, Busselton, Dunsborough, Margaret River, PLUS the best of Bali. You can also purchase an Entertainment™ Membership for other states and New Zealand!

The Entertainment™ Book Membership

The Entertainment™ Book comes with the Gold Card and vouchers, and contains over $20,000 worth of valuable up to 50% off and 2-for-1 offers for many of the best restaurants, cafés, arts, attractions, hotels, travel, shopping and much more!

Give your mum the gift that keeps giving this Mother’s Day. Click on the link below to find out more!
Get your Entertainment Membership now! 

“The Entertainment Membership is great value. With lots of instant savings. It more than outweighs the price. There is something for everyone – causal and fine dining, adventure and family activities. I couldn’t live without it. Plus, I get to support a good cause.” – Zana B. Sydney

 

 

Run For a Reason with CLCRF

Published: April 8th, 2019

Now in its 10th year, the HBF Run for a Reason is Western Australia’s most well-loved event. Over a decade, participants and supporters have raised over $9 Million for more than 190 charities! And the 2019 event is going to be extra special with the goal to smash $10 Million raised in 10 years.

Each year thousands of people of all ages flood the streets of the CBD to get active while raising money for some amazing causes. Event course distances include a 4k, 12k, and 21k half marathon which can be run or walked.

Help make a difference to children and families across Australia with leukaemia by choosing the Children’s Leukaemia & Cancer Research Foundation as your reason when you take part in the HBF Run for a Reason – Sunday, 19 May 2019.

Last year, 20 runners raised a massive $4,443 for the foundation which went directly into child cancer research. With the $10 million goal in sight for HBF, we are hopeful in smashing last years amount! Find out how you can help below!

How to set up a HBF Run for a Reason supporter page
Setting up an online supporter page for HBR Run for a Reason is easy!

Step 1: Register as an event participant online at the Run for a Reason official website.
Step 2: As CLCRF is a non-featured charity, skip the charity selection part of the Run for a Reason registration.
Step 3: After completing the event registration form, follow the prompts to visit the Run for a Reason fundraising website.
Step 4: Sign up to create your personal Run for a Reason supporter page and select us, Children’s Leukaemia & Cancer Research Foundation as your charity to support.
Step 5: Personalise your page with a profile photo and tell everyone why you’re supporting CLCRF.
Step 6: Share your unique supporter page link with your friends, family and colleagues, via email and social media.

Don’t go at it alone, gather the crew and walk, jog or run as a team. Family, friends, work colleagues, we’d love to see everyone at HBF’s 10th-anniversary celebration!

 

Registrations now open for Sydney’s annual Pub2Pub Charity Fun Run!

Published: April 4th, 2019

On Sunday, August 25 this year, the iconic Pub2Pub Charity Fun Run celebrates its 27th year of raising vital funds for Australian charities on Sydney’s Northern Beaches. Organised by the Rotary Club of Brookvale, over those 27 years, the event has raised over $3.5 million dollars for wonderful organisations.

Whether you’re an avid runner or leisurely walker, the Pub2Pub Charity Fun Run and Festival is the perfect event for you. Choose from three different event options:

  • 13km run from Dee Why Beach to Newport Beach
  • 6km run from Warriewood to Newport Beach
  • 3km run or walk from Mona Vale to Newport Beach

New this year, Pub2Pub is also offering a Para Run in all three-course distances!

By taking part in this event and supporting the Children’s Leukaemia & Cancer Research Foundation, you will be helping us fund vital child cancer research. Help us get new treatments to patients faster. Find out how to support us below!

How to set up a Pub2Pub supporter page
Setting up an online supporter page in the Pub2Pub is easy!

Step 1: Register as an event participant online at the Pub2Pub official website.
Step 2: As CLCRF is a non-featured charity, skip the charity selection part of the Pub2Pub registration.
Step 3: After completing the event registration form, follow the prompts to visit the Pub2Pub fundraising website.
Step 4: Create your personal Pub2Pub supporter page and select us, Children’s Leukaemia & Cancer Research Foundation as your charity to support.
Step 5: Personalise your page with a profile photo and tell everyone why you’re supporting CLCRF.
Step 6: Share your unique supporter page link with your friends, family and colleagues, via email and social media.

 

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