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Limited Edition Friends of Finlay Sleeping Bags Available Now!

With so much more awareness and funds to be raised for Hepatoblastoma, the Friends of Finlay Camp Out project is far from over. We’re now inviting you to host your very own family camp out at home with our Friends of Finlay sleeping bags!

Our limited edition Friends of Finlay sleeping bags are available to purchase online, with all funds going towards continuing the important research into childhood cancer at CLCRF.

These sleeping bags are custom-made and can comfortably fit children under 140cm in height. Get your children one of these warm and cozy sleeping bags and they won’t want to sleep anywhere else!

Sleeping bags can be either collected from the Children’s Leukaemia & Cancer Research Foundation office or we can post it to you for an additional postage fee.

Find out more and purchase your limited edition sleeping bag today: http://bit.ly/2TEHkcU

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2018 Southwest Bike Trek raises over $35,000

Kicking, or pedalling, off on Sunday the 7th of October was the 2018 inaugural Southwest Bike Trek. The bike trek started at Mueller Park in Subiaco and finished in Augusta on Saturday the 13th of October.

The trek was organised by Foundation member, Eric Maddock, with the help of Lions and Rotary Clubs.

12 riders completed the 600km bike ride, raising a total of $36,376 to help fund important research into childhood cancers. This brings the total funds raised over the past 16 years close to $700,000!

Riders rode through the wonderful southwest towns of Fairbridge, Harvey, Bunbury, Busselton, Margaret River and Augusta.

Participating in the bike ride this time was Katelyn Lush, Executive Assistant of CLCRF. Katelyn diligently trained for several months with the help of Eric, who she thanks for taking the time to make sure she was prepared.

“In the beginning, I never thought I’d be able to actually do it and travel the entire distance but I am beyond ecstatic and overwhelmed to have reached the end with a fantastic bunch of riders and support crew,” Katelyn says. “You can do anything if you set your mind to it, I did!”

The riders were fortunate enough to enjoy lovely weather throughout the trek. “7 days on the bike and we only had a tiny bit of rain, which for a first-time trekker, was very much appreciated,” Katelyn says.

The team were overwhelmed by the amount of support they received from local communities of WA’s South West during the trek, who deserve acknowledgement.

“The support from all the Lions and Rotary clubs as well as the Binningup Senior Citizens, Mooba Coffee, Jarra Infusions, The Beach Shack Cafe and Swings Kitchen made sure no rider went hungry. It would also be remiss of me not to thank Bunbury Toyota for providing a support vehicle and PEACH for their funding of lights, first aid kit and signs.” Says Eric.

It was also great to see local schools getting involved, including St Joseph’s School in Waroona and Harvey Primary school who brought 65 kids and the principal for a bit of fresh air and exercise.

The Foundation would like to commend the efforts of all who participated in the Southwest Bike Trek and we look forward to another successful bike ride in 2019!

Email swbiketrek@gmail.com to register your interest.

 

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Dr. Rishi and his team get published!

The Foundation received some excellent news earlier this year that a manuscript from Dr Rishi Kotecha and his research team at the Telethon Kids Institute has been provisionally accepted for publication in a high impact journal.

The manuscript is being published in Haematologica, a journal for the broad field of hematology that reports on novel important findings in basic, clinical and translational research.

The manuscript came about from the team’s research project funded by CLCRF to identify novel therapeutic approaches for patients with high-risk infant leukaemia. The team has screened many new drugs and the manuscript focuses on how a particular drug, called Romidepsin, has shown benefits in pre-clinical models of infant leukaemia.

Being published in a high impact journal is important for scientists as it allows the dissemination of information discovered in the laboratory to the broader public of other scientists and other clinicians.

“Without this information being shared, it won’t be translated to the clinical setting. If everyone’s aware of the information that you discover, then they can translate it to have a direct effect on the patients with cancer.” Rishi says. 

Important research projects like this would not be possible without the continued support and funding from CLCRF. “Without the support of CLCRF, our program would not exist essentially,” Rishi says. “Without the support that we get, we just wouldn’t be able to conduct the research we’re doing today.”

The Foundation would like to commend Rishi and his team for this excellent achievement. We look forward to continuing funding the research project and learning more about their developments in infant leukaemia research.

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Congratulations to the Raffle Winner!

Our ‘Lucky Numbers’ Raffle #47 (Permit No LS211271018) was drawn on Thursday 28 February. The winning ticket was no. 21042.

The Winner of the $15,000 CASH has now been contacted and is extremely HAPPY! Our next raffle has started and is drawn on 28 June – if you would like to purchase tickets – please ring our Raffle Hotline 1300 139 651 or head to our raffle website.

Thanks to all who supported this raffle and helped raised funds for vital research into childhood cancers.

 

 

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Kai’s Big Gold Ball Announcement

After achieving huge success last year, the 2nd annual Kai’s Big GOLD Ball will be held on Saturday the 31st of August at the BelleVue Ball Room at Perth Convention and Exhibition Centre. The ball was created in honour of Kai Nell, a brave little boy who lost his battle with Acute Myeloid Leukaemia in January of 2017.

The first annual Kai’s Big Gold Ball raised over $35,000 for the Cancer Council WA. This year’s ball aims to make an even bigger impact and all funds raised will be going towards the important research into childhood cancer at CLCRF.

Kai’s family, or #teamkai, came up with the idea of the Big GOLD Ball as a way to make Kai’s short life make a difference. Kai’s journey was one that touched many hearts and unfortunately, Kai and his family are not alone with their experience. By using his memory to raise awareness and funds for childhood cancer research, #teamkai are bringing hope to children and families who are fighting the same battle they did.

Guests of Kai’s Big GOLD Ball will enjoy a delicious three-course meal, a five-hour drink package, live entertainment and a DJ. There will also be both a silent and live auction to add to the excitement of the night. The event will begin with pre-drinks at 6:30pm and will officially kick off at 7pm until midnight.

If last year’s event is anything to go by, this year’s ball is guaranteed to be an incredibly fun and meaningful night. We can’t think of a better excuse to get dressed up and go out with a group of friends!

Tickets for the ball are available here, with sponsorship packages also available.

Can’t make it to the ball but still want to support #teamkai? Donations to the cause can be made here. Please put #teamkai in the comments so we know why you’re donating.

Date:

Saturday, 31 August 2019 at 6:30PM

Location:

The BelleVue Ball Room, Perth Convention and Exhibition Centre

21 Mounts Bay Road, Perth WA 6000