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Dance for A Cure – an interview with Event Organiser Kylie Dalton

Dance For A Cure is an event that raises funds for the Children’s Leukaemia and Cancer Research Foundation.  Taking place on Sunday 18 November in Forest place, this event is for the dancer in all of us.  The theme this year is superheroes, so get your cape on and register now on the Dance For A Cure website.

 Around The Sound spoke to the Dance For A Cure’s coordinator, Kylie Dalton.

Kylie Dalton is a superhero.  It’s a crown that doesn’t rest well on this unassuming woman.  She doesn’t wear the outward mantle, there’s no cape or amulets, no showiness at all, but spend a few moments with Dalton and you know what it’s like to be caught up in her passion and urgency to create change and better lives for the people around her.

Dalton is the coordinator of Dance For A Cure, a yearly event that has been running since 2012 to raise funds for the Children’s Leukaemia and Cancer Research Foundation.  The clue is in the name.  Each year, Dalton organises an event where people come together to dance and raise funds for the Foundation.

“If you only do one thing for charity this year, this should be the one.”

Here are all the reasons why.

It’s fun…
“It’s just fun.  It’s so much fun!” says Dalton.  As a committed non-dancer, even I’m warming up to the idea of joining in at this point in our conversation.  This is a woman how knows how to generate enthusiasm.

“Dance for a Cure has grown from a flash mob I did in 2012.  I had somebody approach me wanting to do this flash mob in honour of a young lady that passed away from leukaemia, and I was like, ‘I can help you with that!’  Me being me, I don’t do anything by halves; I found out later, after I’d organised the event that she was thinking about 25 people, something really small, and 700 people turned up!”

“That first year, everybody had so much fun.  There was so much joy on people’s faces.”

… But it’s not a fun run …
“The whole reason I started Dance For A Cure, is I hate fun runs.  I hate getting up at five in the morning and everybody does fun runs and bike treks, so I thought how do we put music and dance together with something that is so fundamentally important to everyone, and that is families that are going through childhood cancer.  There are so many of them, it’s the most prolific of childhood deaths.”

… And, the serious part, it’s for the kids.
As she begins to speak about her connection with the Children’s Leukaemia and Cancer Research Foundation and the families and children that she works with, those directly affected by cancer, Dalton immediately begins to well up.

“My motivation is that I work with kids that go through cancer.  If I can’t find some joy for them then what are we doing?  And, it’s because they can’t that we should.”

“Nobody tells the family’s story, the constant struggle.  They might be in remission, but they might end up back in hospital the next day, or the next week, or the next year.  And it also doesn’t mean that they then don’t have a lifetime of complications from the chemotherapy.  We’ve got people that have liver damage, there are so many affects from the drugs used.  They might have fought cancer and effectively won, but have they really?  Their whole life is affected.”

At this point, Dalton excuses herself and leaves the table so that she can compose herself.  This is the serious end of the conversation, the part where I learn that, behind the aura of fun, the can-do approach to her life and work, Dalton is a woman whose humanity runs deep.  After a few moments, she returns to our table, continues where she’s left off, the steel in her eyes glistening with residue of her tears.

“It’s a lifetime diagnosis, because the treatment protocols that the kids are getting at the moment are for adults and they just adjust it based on dosage and not necessarily on what a child’s body can cope with.  Children’s Leukaemia, since I’ve known them, have been funding research on how to change the protocols.  They’re so close to clinical trials, but it just takes funding.  We’re this close to finding solutions to being able to lessen the harm on the bodies of children.”

“When they become cancer free for five years they then spend the rest of their lives dealing with what it’s [chemotherapy] done to their body, their livers, their kidneys, their bones, their teeth, their eyesight, their hearing, their learning ability.  So, yes, they might have no more cancer in their body, but they are in and out of hospital for their rest of their lives dealing with the after effects.  If we can find a better way for the treatment protocols that we have now to work for kids, or targeted therapy, their outcomes could improve exponentially, and they can live much better lives than they’re living right now.  So, that’s my motivation.”

There’s not really much more that needs to be said, except to share the logistics.

The event is being held on Sunday 18 November in Forest Place from 9.30 am – 12.00 pm (no early starts).  Registration is via the Dance For A Cure website.

The theme this year is superheroes.

“This year, we’re doing a superhero dance.  So many kids are being pulled out of remission and going back to treatment at the moment, which is really, really heartbreaking, because I work with the kids.  We’ve done yellow T-shirts, which is the childhood cancer colour.  This year I wanted to do something different.  All the kids love to wear superhero outfits, so let’s get everybody dressed up in superhero costumes, or hero costumes, whoever your hero might be.  Our volunteer team chose Bonnie Tyler’s ‘Holding Out For A Hero’ as the song for people to dance to, so it will have wide appeal having been on the Shrek soundtrack and being first released when the parents were a bit younger.”

If you’re thinking of going (you definitely should), here’s a photo of Kylie Dalton.  If you don’t have a superhero costume, just come along as Kylie, she all the superhero you’ll ever need.

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One final thing.  If you’re mortally afraid of dancing, don’t be.

“Don’t get bogged down on knowing the steps or learning the steps.  It’s about supporting an incredible charity, that’s a West Australian charity, that funds research at the Telethon Kid’s Institute, which is where all of the money raised goes.”

“The biggest things it that Dance for a Cure encompasses the whole community so, whatever way you want to be involved, you can be involved.  There’s no barriers to it.”

“We’ve filmed all of the public dance piece and all the choreography is broken down into sections and it’s all online for people to be able to do.”

Register here, register now.

“Our goal is to get a thousand people to this year’s event.”

Let’s make it 10,000.

Source: Around the Sound – October 30, 2018 by Andrew Thompson

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Perth set to ‘Dance for a Cure’ to help fight Childhood Cancer

On Sunday 18 November at 9:30am, the City of Perth will be awash with choreographed vibrant dancing from hundreds of families in Forest Place to raise vital funds and awareness for Telethon and help fight a cancer that is still the leading cause of death from disease in Australian children.

Individuals and families are being encouraged to dress up as their favourite hero — whether that’s a superhero such as Spiderman, Superman and Wonder Woman, their favourite sports star or anyone in their lives that they see as a hero — and learn a short, easy to follow, and fun routine.

In its fifth year, Dance for A Cure has always left participants thrilled, inspired and eager to keep dancing.

The event has raised almost $80,000 for Children’s Leukaemia and Cancer Research Foundation (CLCRF) to continue their important ground-breaking research so that future generations of children will be the ones to live cancer free.

Experienced choreographer Ashanti Suriyam from The Dance Workshop has crafted this year’s routine to Bonnie Tyler’s chart topping hit, Holding Out for a Hero, for the public to learn before the big day.

A rehearsal will take place the week before on Sunday 11 November at Lathlain Oval, Lathlain.

Five other dance schools from across Perth will also be performing their own showcase routines before ‘exiting stage left’ for the general public to strut their stuff in their hero outfits.

Children’s TV star from the 80’s and Telethon Mascot Fat Cat will dust off his dancing paws and join in with the kids and adults for the main performance.

The routine choreography has been recorded and is available on the Dance for a Cure website — www.danceforacure.com.au — for participants to practice at home.

Dance for a Cure welcomes a brand new long-term partnership with Telethon and all funds raised from the event will be presented to Telethon to help ensure a better life for children facing this life threatening illness.

Event organiser Kylie Dalton said families and individuals that take part relish the unique experience.

“It has been my honour to organise this event for the families of Perth. My joy is seeing them dance and then hearing them want to do it all over again once the dance is done,” said Kylie.

“It makes all the planning and sleepless nights worth it. We need to keep this in the news so that people never stop looking for a cure to all childhood cancers. What we raise goes directly to our own WA Research projects.”

Individuals and families from all over Perth are strongly encouraged to register to be a part of this great event via the Dance for A Cure website: www.danceforacure.com.au.

Source: Have a Go News – 29

 

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Nambung Country Music Muster raises money for CLCRF

In October 2018, the Nambung Country Music Muster was held at Nambung Station. The music festival saw 1,200 country music fans enjoying 4 days of entertainment around the historic Nambung Station shearing shed, 200 kilometres north of Perth.

Headlining the festival were the talented Pete Denahy, Sharon Heaslip, Dianne Lindsay and Peter Simpson. The festival celebrated all things country, with guests also enjoying old-time dancing, food trucks and the popular Bush Poets Breakfast.

The Nambung Country Music Muster supports local groups and a large proportion of the proceeds go to several different charities. The festival was able to raise $2000 for CLCRF which will go towards the vital research into childhood cancer.

CLCRF thanks the Nambung Country Music Muster for their kind donation and we wish them continued success for this year’s festival.

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SouthWest Bike Trek raises more than $35,000 for child cancer research

A huge congratulations to the 12 riders who completed a 600km bike ride across WA’s South West, raising a total of $36,376* to help fund vital research to combat childhood cancers.

The team made it to the finish line, relatively unscathed, at Cape Leewin Lighthouse, Augusta, seven days after beginning their journey in Subiaco.

The trek stopped at many locations in WA’s South West along the way, with the team overwhelmed by the support of local communities.

A big thank you to the Leeuwin Lions Club, The Busselton Rotary, Business and Professional Women’s Association, Lions Club of Waroona, Rotary and Lions Club of Harvey, South Bunbury Rotary and several other organisations who kept the hungry riders fed as well as offering generous donations and, in some cases, offering a place to sleep for the night.

Local schools also joined in on the ride, including St Joseph’s School in Waroona and Harvey Primary School who brought along 65 kids and the school principal for a bit of fresh air and exercise.

The event has raised close to $700,000 for child cancer research projects over 16 years. It’s not too late to donate! Donate now to the South West Bike Trek!

*donation total as of 26 October 2018

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CLCRF continues ‘Million Dollar’ partnership into second year

The Children’s Leukaemia & Cancer Research Foundation Inc. are proud to be a Million Dollar Partner of Telethon7 Perth for a second year!

The $1 million donated from CLCRF to Telethon has been earmarked solely for childhood cancer research, ALL, infant ALL, brain tumours and sarcomas.

CLCRF chairman Geoff Cattach presented the cheque to Channel 7’s Tina Altieri during last weekend’s Telethon coverage.

“Next year we’re hopeful that here at Telethon Kids Institute they’ll be additional research for children’s brain tumours and the relationship with Telethon allows us fund research into sarcomas.

“Part of the reason (we have) our relationship with Telethon (is that it) allows us to put more funds back into the research for children’s cancers.”

Telethon raised more than $38 million to support crucial child health research, provide vital medical equipment, and drive social welfare programs.

Since 1968 Western Australians have raised over $300 million through Telethon for the kids of WA.

There are several ways you can continue to help support Telethon. Book your tickets now for this weekend’s Friends of Finlay Camp Out and or register for our Dance for A Cure 2018 in November – all monies raised will go to Telethon and child cancer research.

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Dance For A Cure holds out for a hero at Forest Place November 18

THERE will be no immediate cause for alarm when a league of superheroes descends on Forest Place.

The heroes will fight the villain of childhood cancer at the fifth Dance For A Cure at 9.30am on Sunday, November 18.

All funds from the event will help Telethon ensure a better life for children facing the life-threatening illness.

Five Perth dance schools will perform a showcase before the public take centre stage in a routine to Bonnie Tyler’s Holding Out For A Hero, choreographed by The Dance Workshop’s Ashanti Suriyam.

Individuals and families are encouraged to learn the short, easy-to-follow and fun routine from an online video and attend the event dressed as their favourite hero, be it superhero, sports star or personal hero.

Telethon’s Fat Cat will also dance in the main performance and there will be a rehearsal at Lathlain Oval on Sunday, November 11.

Event organiser Kylie Dalton said it was an honour to be part of Dance For A Cure.

“My joy is seeing them dance and then hearing them want to do it all over again once the dance is done,” Dalton said.

“It makes all the planning and sleepless nights worth it.

“We need to keep this in the news so that people never stop looking for a cure to all childhood cancers.

“What we raise goes directly to our own WA research projects,” she said.

Register and learn the routine at www.danceforacure.com.au.

Source: Eastern Reporter – 18

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University of NSW production raises money for CLCRF

Every year, The University of New South Wales (UNSW) medical students put on an amazing, charity-driven production that showcases their skills in acting, dancing, singing, music and tech production. UNSW donates all proceeds from their production to a selected charity each year and in 2018 all profits were proudly donated to CLCRF.

UNSW’s MedShow started in 2000 with the annual productions having traditionally been an original script exploring the lives of medical students and doctors.

Last year’s MedShow, titled She’s the Mandible, centred around an aspiring orthopaedic surgeon, Jessie who is rejected from the Bones R’ Us Hospital for Orthopaedics and Erectile Dysfunction on the basis of being a woman.

She’s the Mandible had three shows in October 2018 and was a huge success. We are thrilled to report that the UNSW were able to raise a generous $5,800 for CLCRF.

We would like to thank the UNSW for choosing to support CLCRF and the Foundation’s important research into childhood cancer.

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And we’re off!! The South West Bike Trek is underway

We’re already into day 4 of the South West Bike Trek with our 12 riders clocking in more than 200km to help raise vital funds for child cancer research.

The team are almost half way through their 600km journey across WA’s iconic South West region which ends in Augusta on Saturday.

Several schools have also joined in on their journey, including St Joseph’s School in Waroona and Harvey Primary School who brought along 65 kids and the school principal for the ride.

It’s important to eat well when cycling such great distances so the beautiful afternoon tea from the wonderful ladies of the Business and Professional Women’s Association was kindly appreciated, as well as a spot of lunch in Waroona provided by Lions Club of Waroona.

Rotary and Lions Club of Harvey shared their generosity by hosting the riders for the evening, which is where the South West Bike Trek first started in 2002.

The event has raised close to $700,000 for child cancer research projects over 16 years. Make sure you follow our Facebook page to keep up to date with the latest videos.

You can donate now to the South West Bike Trek!

South West Bike Trek 2018 from Keep the Flame Alive on Vimeo.

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CLCRF Researchers head overseas to extend their knowledge

Two of The Children’s Leukaemia and Cancer Research Foundation’s top researchers attended conferences in North America and Europe to continue their studies in both acute lymphoblastic leukemia (ALL) and the bone marrow microenvironment during leukaemogenesis.

Laurence Cheung headshot smallDr Laurence Cheung attended a very important Keystone conference ‘Keystone Symposia: Novel Aspects of Bone Biology’ in June 2018 in Salt Lake City. Attendance at this conference has reaped many dividends in terms of new collaborations and networking for the Microenvironment project as well as learning new insights regarding the bone marrow microenvironment during the development of leukaemia. Dr Cheung also presented a poster at the conference.

thumbnail_sat7030In May this year, Dr Rishi Kotecha attended the iBFM and CLLS conference in Helsinki, Finland. This conference is by invitation only and one of the specific benefits included meeting TKI’s research laboratory collaborators from the Karolinska Institutet to further develop one of the iALL projects in progress.

Acute lymphoblastic leukaemia (ALL) is a type of cancer that affects the blood and bone marrow. ALL is characterised by an overproduction of immature white blood cells, called lymphoblasts or leukaemic blasts.

CLCRF funded both of these travel grants to the conference.

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Charity rider’s wheel power

COMO resident Katelyn Lush is one of 12 cyclists this week riding from Perth to Augusta for the Southwest Bike Trek. The journey across the South-West started on Sunday in Subiaco and has stops at Fairbridge, Preston Beach, Harvey, Eaton, Busselton and Margaret River before finishing at Cape Leeuwin Lighthouse, Augusta on Saturday.

Ms Lush, the Children’s Leukaemia and Cancer Research Foundation (CLCRF) executive assistant, said she was no professional cyclist but wanted to give it a crack.
“Two years ago, I cut off my 40cm long hair and shaved my head and raised $13,500 with my friend for charity so this year I thought the bike trek would be the next best thing,” she said.
“I decided to give it a crack and it seemed like a good idea.”

Ms Lush spent 10 months training in the lead-up to the 600km ride. Ms Lush has an Everyday Hero page to raise funds for CLCRF. She has currently raised over $800, beating her goal of $500, but wants to raise more. To donate go to https://bit.ly/2P8J09a.

Source: Southern Gazette (South Perth)

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